For Members of the Media

Please download our Media Kit for helpful information about mitochondrial disease and the UMDF.
For interview requests for other information about the UMDF, please contact the Communications Department
Director of Communications – Cliff Gorski
Phone: 888-317-UMDF(8633)

For General Inquiries

The information available on this page is designed to be helpful to you should you need guidance in UMDF branding and communications.  Should you have any questions about the use of any of these materials, please contact the Communications Office at the United Mitochondrial Disease Foundation at 888-317-UMDF(8633) or



Any individual fundraising on behalf of the UMDF and using the UMDF logo on brochures, t-shirts, flyer’s, pamphlets, save a date cards, invitations, or any printed or broadcasted information must have prior permission from the UMDF National Office before those materials are printed or aired. This is required to insure brand integrity and adherence of copyright.

Please submit your artwork for approval to the UMDF Communications Office before you send anything to be printed or published for approval. If the file is under 2MB, email it to . If your artwork is larger than 2MB, please click on this link to upload and send your file.

      If you are having problems downloading a logo or if you require the logo in a different format or larger size, email your request to

      Uploading Photos & Video

      The UMDF encourages members to send in photos and videos. Photo and video’s can be emailed to if the file is 2 megabytes or less. If the Photo or Video is over 2 megabytes and less than 2 gigabytes, it can be sent to the UMDF through this link. VIDEO OF PERSONAL STORIES CANNOT BE MORE THAN 3 MINUTES IN LENGTH.

      Photo & Video Release Form

      The UMDF welcomes photos/videos for use in our publications, advertising and website. Prior to publication, the UMDF requires that all participants in a photo or video sign a Photo and Video Release form. You can download the form below. All participants must have their own, individual form. They must sign the form. If a person appearing in a photo or video is under the age of 18, a parent or legal guardian may fill out and sign the form for them. No photos or videos can be used without a filled out Photo/Video Release Form.

      Download the Photo/Video Release Form (Word Doc)

      After the form is filled out, it may be mailed, emailed or faxed to:
      UMDF Communications Department
      8085 Saltsburg Road, Suite 201
      Pittsburgh, PA 15239

      or fax it back to the UMDF at 412-793-6477

      or scan the completed Photo/Video Release Form and attach it in an e-mail it to:

      News Release Templates

      The Communications Office at the UMDF is always ready to help you create a news release for an upcoming event. If you need help creating and sending a news release, please contact the national office at 888-317-UMDF(8633) or e-mail

      If you would like to create your own news release, here are some tools to help you: “Working with the Media” (PDF) for tips on how to reach out to the media in your area.

      When creating your news release, you should use the approved UMDF News Release Template:News Release Template ( Word file)

      Click here for an example of how your news release should look when completed and ready for print.
      If you are sending a news release, you should also consider printing and sending the following pieces of information for reporters:

      UMDF Approved Language

      In the course of writing a news release, brochure, flyer or other written or broadcast information, UMDF requires the following ‘boilerplate’ language for inclusion in your text. This is required so that we are speaking with the same message across the nation. You may copy and paste this text into your document.

      Every 30 minutes, a child is born who will develop a mitochondrial disease by age 10, although the actual number of children born with the disease is thought to be much higher. More and more adults are being diagnosed with a mitochondrial disease. Recent research indicates that one in 200 people harbors a genetic mutation that can lead to mitochondrial disease in them or their offspring. Most patients suffer symptoms for years before they are accurately diagnosed with a mitochondrial disease. Mitochondrial diseases result from the failure of the mitochondria, which are located in the cells of our bodies. Mitochondria are responsible for creating more than 90% of the energy needed to sustain life and support growth. When mitochondria fail, less energy is produced causing cell injury or cell death. On a larger scale, organ systems begin to fail. The disease is often debilitating. In some cases, it may result in death. Adult onset is becoming more and more common. There is no cure for mitochondrial disease.

      Founded in 1996, the United Mitochondrial Disease Foundation (UMDF) works to promote research and education for the diagnosis, treatment and cure of mitochondrial diseases and to provide support for affected individuals and families. Since its inception, the UMDF has funded nearly  $11.5  million in research, making it the leading non-governmental contributor of grants focused solely on mitochondrial disease. The UMDF, based in Pittsburgh, PA, is a national organization, represented around the world by thousands of members. For more information about mitochondrial disease or the UMDF, visit