Resources for Medical Child Abuse and Child Protective Services

What Every Parent Needs to Know…

UMDF strives to present the most current information available to our patient community. Because of recent events, UMDF has gathered together our best informational resources and placed them on this page for your convenient reference. We are providing this information to you so that you, the parent or relative of an affected child, can be the best advocate for the treatment and care of your child in a medical setting.

If you find yourself in need of legal advice…..

UMDF is grateful for the work of Attorney Darice M. Good in gathering a list of attorneys who handle child welfare cases for parents in need to legal information. Download a PDF of important information.

MitoAction has a list of additional resources.

Symposium Presentations & Webinars

Six Degrees of Prevention: Easing Parents’ Fears of Child Protective Services

The Challenges and Risks in Navigating Patient Care… In a World that is Still Learning about Mitochondrial Disease

Optimizing Interactions with the Medical System for Patients with Complex Medical Needs

Printables & Downloadables

  • Emergency Room Protocol Card

    This card easily fits into a wallet or purse and can be given to medical personnel. The card states “This patient has a mitochondrial disease and requires specific emergency room protocols”. The card provides a smart device link to the UMDF Emergency Room Letter that can be viewed online and provides for a smart device link to Mito 101.

  • Communicating with your Healthcare Provider

    Information for you to use when speaking with your healthcare provider.

  • Immediate Information Card for Clinicians

    This card was developed by the UMDF in 2013 and provided to patients to give to their medical professionals. It provides an immediate link to the UMDF website and to Mito101, our resource for physicians and patients.

  • “COULD IT BE MITO?” for Physicians

    This card outlines symptoms and evaluations for a mitochondrial disease patient.

  • Myths about Mitochondrial Disease

    Courtesy of the Cleveland Clinic, this document contains myths and facts about mitochondrial disease.

  • MITO 101

    This link will take your physician to Mito 101, which provides valuable resources in the care and treatment of a mitochondrial disease patient.

How Else Can You Advocate for your Child?

Leadership Creed – Click here

Help the UMDF educate physicians/clinicians.
Order this free information from the UMDF and make sure it gets into the hands of physicians and clinicians everywhere!
Email us at or call 888-317-UMDF (8633).

Help us bring information to your community!
UMDF is the only organization that has brought medical experts right into our communities.

Since 2007, is has been our priority to reach out to physicians through Grand Rounds. The program introduces and/or broadens the knowledge base on mitochondrial diseases. The primary purpose of the Grand Rounds is to provide continuing education to health care providers on topics specific to mitochondrial disorders, which also furthers the UMDF mission to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

Below are some of the recent facilities and cities in which “Grand Rounds” and “Family Meetings” were scheduled.

Mayo Clinic Children’s Center- Rochester, MN
Gillette Children’s Hospital – St. Paul, MN
Saint Mary’s Hospital – Rochester, MN
Lurie Children’s Hospital- Chicago, IL
Embassy Suites Conference Center -San Marcos, TX
Dell Children’s Hospital -Austin, TX
Tulane University – New Orleans, LA
University Medical Center – Las Vegas, NV
East Tennessee Children’s Hospital – Knoxville, TN
St. Barnabas Hospital – Bronx, NY
Egleston Children’s Hospital – Atlanta, GA
Children’s at Scottish Rite – Atlanta, GA
University of South Florida – Tampa, Florida
Presbyterian Healthcare – Charlotte, NC
Blank Children’s Hospital – Des Moines, IA
Columbus Regional Health Care System – Columbus, GA

Carilion Clinic – Roanoke, VA
Doernbecher Children’s Hospital – Portland, OR
Cape Cod Hospital – Hyannis, MA
Tripler Army Medical Center – Honolulu, HI
Cook Children’s Medical Center – Ft. Worth, TX
St. Mary’s Medical Center – Evansville, IN
John Hopkins Medicine – Baltimore, MD
Georgetown University Hospital – Washington, D.C.
Kennedy Krieger Institute – Baltimore, MD
Univ. of Utah/Children’s Medical Center – Salt Lake City, UT
Rush University Medical Center – Chicago, IL
Carolina Medical Center
Buffalo General Hospital – Buffalo, NY
Florida Hospital – Orlando, FL.
Nemour Children’s Hospital – Jacksonville, FL

Help us bring a Family Meeting and a Grand Rounds to your community.

Call us at 888-317-UMDF (8633) with your ideas!