The Mitochondrial Care Network (MCN) is a joint effort of the Mitochondrial Medicine Society (MMS), the United Mitochondrial Disease Foundation (UMDF), MitoAction and Foundation for Mitochondrial Medicine (FMM).
The MCN will formally unify clinicians who provide medical care to individuals with mitochondrial disease; to define, design and implement best practices in mitochondrial medicine, building on current consensus guidelines for mitochondrial diagnosis and care; and to optimize management and care to improve patient outcomes.
The MCN’s goals include establishing an outstanding standard of continually improving care for mitochondrial disease in the United States, while integrating a formal infrastructure for research and clinical trials. The MCN will be an organized group of individual Mitochondrial Medicine Centers (MMCs) that:
- Offer proper evaluation and diagnosis for primary mitochondrial disease;
- Provide comprehensive medical care to individuals with primary mitochondrial disease;
- Foster patient education; and
- Engage in active participation in clinical research and mitochondrial registries (NAMDC,MCDR)
In February, 2018, more than 26 applications were submitted for review by the MCN Governance Board for selection for the pilot phase.
Check back soon for additional details and updates as we move along the Roadmap to a Cure.