Recurring

LHON Sisterhood

Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by […]

Recurring

LHON Live! Monthly Call

This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call:   Jessica Loomer and Andy Marks Reach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with […]

Recurring

LHON – New England Connect

This is a call for those living in New England with an interest in LHON. This call takes place every other month on the second Tuesday of the month, at 7:30pm Eastern. Hosts Ian Albreski, Howard Sumner, and Molly Garrone facilitate this call. Consider joining the call to share your experiences with others in a […]

Recurring

LHON – Pacific Northwest Connect

This is a call for those living in the Pacific Northwest with an interest in LHON. This call takes place every other month on the third Thursday of the month. Consider joining the call to share your experiences with others in a similar situation. Hosts Patrick Doolittle, Jana Bourne, and Ashley Trenkenschuh facilitate this call.  […]

Recurring

Navigating Education & LHON

Navigating Education & LHON This call takes place a few times each year at 8:00pm EST/5:00pm PST and is hosted by Scarlet Keolanui Dreifuss. If you are interested in LHON and education-related matters, you are invited to join.  Reach out to Scarlet Keolanui Dreifuss at scarletkeolanui@gmail.com with any questions. Tuesday, February 23, 2021 at 5:00pm Pacific/8:00pm Eastern […]

LHON MS Zoom Event

LHON MS Zoom Event This Zoom event is for those in the LHON community who also live with MS. Our goal is to develop connections among those who have both LHON and MS. This call takes place quarterly on select dates.  Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. Thursday, May 20, 2021 […]

Recurring

LHON Live! Monthly Call

This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call:   Jessica Loomer and Andy Marks Reach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with […]

LHON – Young Adults

LHON Young Adults This call is for all young adults (18 and over) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the second Tuesday of the month unless otherwise noted. Reach out to Molly Garrone at mollyeknox@gmail.com with […]

Recurring

LHON – California Connect

This is a call for those living in California with an interest in LHON. This call takes place every other month on the third Tuesday of the month, at 6pm Pacific. Host Bob Banks facilitates this call. Consider joining the call to share your experiences with others in a similar situation.  Reach out to Bob […]

Recurring

LHON Sisterhood

Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by […]

Recurring

Navigating Employment/Careers with LHON

This call takes place a few times each year at 8:00pm EST/5:00pm PST and is hosted by Zak Turner. If you are interested in LHON and employment-related matters, you are invited to join.  Reach out to Zak Turner at zakturner24@gmail.com with any questions. Tuesday, March 23, 2021 at 5:00pm Pacific/8:00pm Eastern Tuesday, June 22, 2021 […]

Recurring

LHON Live! Monthly Call

This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call:   Jessica Loomer and Andy Marks Reach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with […]