Recurring

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call:  […]

LHON MS Zoom Event

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This Zoom event is for those in the LHON community who also live with MS. Our goal is to develop connections among those who have both LHON and MS. This call takes place quarterly on select dates.  […]

LHON – Young Adults

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for all young adults (18 and over) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the second […]

Recurring

LHON – California Connect

NOTE: Since the meeting is intended for those living in California, this virtual meeting is set in Pacific Time. This is a call for those living in California with an interest in LHON. This call takes place every other month on the third Tuesday of the month, at 6pm Pacific. Host Bob Banks facilitates this […]

LHON Sisterhood – November

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all […]

Recurring

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call:  […]

Recurring

Navigating Education & LHON

NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. This call takes place a few times each year at 8:00pm EST/5:00pm PST and is hosted by Scarlet Keolanui Dreifuss. If you are interested in LHON and education-related matters, you are invited to join.  Reach out to […]

Recurring

LHON – New England Connect

This is a call for those living in New England with an interest in LHON. This call takes place every other month on the second Tuesday of the month, at 7:30pm Eastern. Hosts Ian Albreski, Howard Sumner, and Molly Garrone facilitate this call. Consider joining the call to share your experiences with others in a […]

Recurring

LHON – Pacific Northwest Connect

NOTE: Since the meeting is for Pacific Northwest, this virtual meeting is set in Pacific Time. This is a call for those living in the Pacific Northwest with an interest in LHON. This call takes place every other month on the third Thursday of the month. Consider joining the call to share your experiences with […]