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3006, 2018

UMDF Honors Volunteers with Top National Awards

June 30th, 2018|0 Comments

(Nashville, TN)   At its annual international mitochondrial disease symposium, Mitochondrial Medicine 2018, the United Mitochondrial Disease Foundation recognized four individuals for their efforts to spread awareness about mitochondrial disease. During the June 29, 2018 [...]

903, 2018

Intravenous Arginine Benefits Children after Acute Metabolic Strokes — CHOP Researchers Find Notable Responses, No Adverse Events in Children with Mitochondrial Disease

March 9th, 2018|0 Comments

FOR IMMEDIATE RELEASE Friday, March 9, 2018 John Ascenzi Children’s Hospital of Philadelphia (267) 426-6055 Ascenzi@email.chop.edu Intravenous Arginine Benefits Children after Acute Metabolic Strokes --CHOP Researchers Find Notable Responses, No Adverse Events in Children [...]

1801, 2018

Meeting report from the Mitochondrial Medicine Southeast Regional Symposium – understanding mitochondrial disease and mitochondrial dysfunction: Opportunities and impacts in the clinic and laboratory.

January 18th, 2018|0 Comments

This meeting report is from the 2017 Mitochondrial Medicine Southeast Regional Symposium, that UMDF conducted with the Foundation for Mitochondrial Medicine.  It was published in the Journal of Translational Science of Rare Diseases.  [...]

301, 2018

Mito Town Hall Meeting on January 5th

January 3rd, 2018|0 Comments

Friday, January 5th, join the entire community at 12PM EST.  Representatives from mitochondrial disease organizations and institutions from around the world talk about what's ahead for the community in 2018!  Join us at 1-866-414-2828, participant [...]

210, 2017

Stealth BioTherapeutics Granted Orphan Drug Designation of Elamipretide for Treatment of Patients with Primary Mitochondrial Myopathy

October 2nd, 2017|0 Comments

BOSTON, October 2, 2017 /PRNewswire/ -- Stealth BioTherapeutics (Stealth), a clinical-stage biopharmaceutical company developing therapeutics to treat mitochondrial dysfunction, today announced that the U.S. Food and Drug Administration's (FDA) Office of Orphan Products Development (OOPD) has [...]

408, 2017

UMDF Grant Recipients Awarded

August 4th, 2017|0 Comments

FOR IMMEDIATE RELEASE August 4, 2017 Contact: Clifford Gorski Director of Communications 412.793.8077 cliff@umdf.org UMDF RESEARCH GRANT RECIPIENT AWARDS FOUNDATION MAKES $625,000 SCIENTIFIC INVESTMENT TOWARDS TREATMENTS AND CURES (Alexandria, VA)  As part of its [...]

2707, 2017

UMDF Honors Volunteers With National Awards

July 27th, 2017|0 Comments

      FOR IMMEDIATE RELEASE July 27, 2017 Contact: Clifford Gorski Director of Communications 412.793.8077 cliff@umdf.org (Alexandria, VA)   At its annual international mitochondrial disease symposium, Mitochondrial Medicine 2017, the United Mitochondrial Disease Foundation [...]

307, 2017

UMDF Statement on Charlie Gard

July 3rd, 2017|0 Comments

UMDF Statement on Charlie Gard Our hearts go out to the Gard family in the U.K. They are in a position that no parent should ever have to experience and our thoughts are [...]

2908, 2016

NORD Publishes Physician Guide to Mitochondrial Myopathies

August 29th, 2016|0 Comments

National Organization for Rare Disorders and Rare Disease Experts Publish Guide to Promote Diagnosis and Treatment for Patients DANBURY, CT--(Marketwired - June 28, 2016) - As part of its ongoing series to promote physician awareness [...]

1706, 2016

UMDF Volunteer Awards Announced

June 17th, 2016|0 Comments

At its 20th Anniversary Banquet at Mitochondrial Medicine 2016, the United Mitochondrial Disease Foundation (UMDF) honored several of its volunteers for their role in helping the entire mitochondrial disease community move closer to treatments and cures.  [...]

1706, 2016

Community Reacts to Stealth BT Encouraging News

June 17th, 2016|0 Comments

Stealth BioTherapeutics announced positive results from its MMPOWER mitochondrial myopathy trial Mitochondrial disease organizations across the United States and Canada are thrilled with the results. "Today's news from the Stealth BioTherapeutics trial represents far more [...]

1606, 2016

Stealth Bio Therapuetics Reports Positive Data

June 16th, 2016|0 Comments

Stealth Bio Therapeutics Reports Positive Data in First-Of-Its- Kind Primary Mitochondrial Myopathy Trail. Announcement made at the UMDF's Mitochondrial Medicine 2016 Symposium in Seattle See Details Here

1302, 2015

Mitochondrial Myopathy Trial

February 13th, 2015|0 Comments

  Stealth BioTherapeutics announced the start of a new clinical trial for patients with Mitochondrial Myopathy. On February 13, 2015, Stealth BIOTHERAPEUTICS CEO Travis Wilson detailed the new clinical trial, outlined which patients are eligible, [...]