Press Room 2016-11-02T18:20:13+00:00

News Feed

1804, 2018

NeuroVive’s KL1333 Receives FDA Orphan Drug Designation for Treatment of Mitochondrial Diseases

April 18th, 2018|0 Comments

Click here to see the new release

504, 2018

Fight for a cure will continue for Jody Thompson

April 5th, 2018|0 Comments

See story about the last "Bet on Baylee" event here.

504, 2018

Mitochondrial Disease Patients Face Difficult Road to Diagnosis

April 5th, 2018|0 Comments

Click here to see the information on this paper. Listen to the Podcast with Dr. Hirano and Dr. Thompson 

2703, 2018

Preclinical Testing in 3 Model Systems Suggests Some Antioxidants May Be Effective Mitochondrial Disease Treatments

March 27th, 2018|0 Comments

Preclinical Testing in 3 Model Systems Suggests Some Antioxidants May Be Effective Mitochondrial Disease Treatments --CHOP Researchers Test 7 Compounds in Seeking Candidates for Clinical Trials; Early Efficacy Seen in NAC and Vitamin E-- [...]

1303, 2018

UMDF joins NORD and other Patient Advocacy Groups in opposition to “Right to Try” legislation.

March 13th, 2018|0 Comments

See the letter by patient advovcacy groups in opposition here.

903, 2018

Intravenous Arginine Benefits Children after Acute Metabolic Strokes — CHOP Researchers Find Notable Responses, No Adverse Events in Children with Mitochondrial Disease

March 9th, 2018|0 Comments

FOR IMMEDIATE RELEASE Friday, March 9, 2018 John Ascenzi Children’s Hospital of Philadelphia (267) 426-6055 Ascenzi@email.chop.edu Intravenous Arginine Benefits Children after Acute Metabolic Strokes --CHOP Researchers Find Notable Responses, No Adverse Events in Children [...]

902, 2018

Penguin’s Goalie Matt Murray Makes Dream Come True for Child WIth Mito

February 9th, 2018|0 Comments

See the story here.

802, 2018

Pittsburgh woman documents struggles with mitochondrial disease

February 8th, 2018|0 Comments

See story here.

102, 2018

Permission given to create Britain’s first ‘three-person babies’

February 1st, 2018|0 Comments

See the story here.

2901, 2018

NeuroVive Reports Breakthrough in Mitochondrial Myopathy Project

January 29th, 2018|0 Comments

See news release here

2301, 2018

NIH to Launch Genome Editing Research Program

January 23rd, 2018|0 Comments

See information here.

1801, 2018

Meeting report from the Mitochondrial Medicine Southeast Regional Symposium – understanding mitochondrial disease and mitochondrial dysfunction: Opportunities and impacts in the clinic and laboratory.

January 18th, 2018|0 Comments

This meeting report is from the 2017 Mitochondrial Medicine Southeast Regional Symposium, that UMDF conducted with the Foundation for Mitochondrial Medicine.  It was published in the Journal of Translational Science of Rare Diseases.  [...]

1801, 2018

Healthy mothers can pass on ‘hidden’ disease mutations, study shows.

January 18th, 2018|0 Comments

See the story here.

1601, 2018

#LetsMakeASEEN: United Mitochondrial Disease Foundation

January 16th, 2018|0 Comments

UMDF's Science and Alliance Officer, Phil Yeske, Ph.D. is featured - see it here.

1001, 2018

Defeating Diseases with Energy

January 10th, 2018|0 Comments

See Story Here

1001, 2018

CHOP researchers explore effective nutritional therapies for mitochondrial disease

January 10th, 2018|0 Comments

See story here

801, 2018

Mitochondrial Organizations Collaborate to Launch Pilot Phase of the Mitochondrial Care Network

January 8th, 2018|0 Comments

Atlanta, GA -- January 8, 2018 The Foundation for Mitochondrial Medicine (FMM), MitoAction, the Mitochondrial Medicine Society (MMS) and the United Mitochondrial Disease Foundation (UMDF) today collectively announce an important new initiative to create [...]

501, 2018

People With Parkinson’s Have Two Crucial Brain Differences Compared To Healthy People

January 5th, 2018|0 Comments

See the story here!

301, 2018

Mito Town Hall Meeting on January 5th

January 3rd, 2018|0 Comments

Friday, January 5th, join the entire community at 12PM EST.  Representatives from mitochondrial disease organizations and institutions from around the world talk about what's ahead for the community in 2018!  Join us at 1-866-414-2828, participant [...]

1812, 2017

Stealth BioTherapeutics Granted Fast Track Designation for Elamipretide for the Treatment of LHON

December 18th, 2017|0 Comments

See the story here.

612, 2017

First DNA sequence from a single mitochondria

December 6th, 2017|0 Comments

See the news release here.

3011, 2017

NeuroVive’s Genetic Mitochondrial Disease Program NVP015 Reaches Significant Milestone

November 30th, 2017|0 Comments

Click here to read the news release.

2211, 2017

Khondrion presents Phase II KHENERGY Trial Data

November 22nd, 2017|0 Comments

See the press release from Khondrion here.

1511, 2017

UMDF joins NORD statement Statement in Opposition to the Senate’s Proposed Weakening of the Orphan Drug Tax Credit

November 15th, 2017|0 Comments

UMDF signed onto this statement, see it here.

611, 2017

Stealth BioTherapeutics Initiates Phase 3 Study of Elamipretide in Patients with Primary Mitochondrial Myopathy

November 6th, 2017|0 Comments

Click here for details

2510, 2017

New clinical care guidelines issued for patients with mitochondrial disease.

October 25th, 2017|0 Comments

You can see the MMS Consensus Report here

1110, 2017

Mitochon Wins MJFF Grant to Advance Mitochondrial Research in Parkinson’s

October 11th, 2017|0 Comments

Click here to see complete story.

1010, 2017

Dr Mark Korson Joins VMP Genetics Expanding Metabolic Medicine Services to Physicians, Hospitals, and Institutions Worldwide

October 10th, 2017|0 Comments

VMP Genetics and Dr. Fran Kendall, pioneers in rare genetics and telemedicine, are pleased to announce that Dr. Mark Korson has joined VMP as the Director of Physician Support and Educational Services divisions.  Expanding [...]

210, 2017

Stealth BioTherapeutics Granted Orphan Drug Designation of Elamipretide for Treatment of Patients with Primary Mitochondrial Myopathy

October 2nd, 2017|0 Comments

BOSTON, October 2, 2017 /PRNewswire/ -- Stealth BioTherapeutics (Stealth), a clinical-stage biopharmaceutical company developing therapeutics to treat mitochondrial dysfunction, today announced that the U.S. Food and Drug Administration's (FDA) Office of Orphan Products Development (OOPD) has [...]

2109, 2017

UMDF Opposes the Graham-Cassidy Affordable Care Act Repeal/Replace Bill

September 21st, 2017|0 Comments

The Senate may soon consider a bill by Senators Graham and Cassidy that would substantially change the Affordable Care Act (ACA).  If it passed, it could then be considered by the House in an [...]

1509, 2017

UMDF, MitoAction and the Foundation for Mitochondrial Medicine join to raise awareness

September 15th, 2017|0 Comments

Click here to see the story.

3108, 2017

Breakthrough in Understanding Mitochondria

August 31st, 2017|0 Comments

Click here to see the story

2408, 2017

Altered Mitochondria Associated with Increased Autism Risk

August 24th, 2017|0 Comments

See story here.

708, 2017

UMDF CEO/Executive Director Charles A. Mohan, Jr., Announces 2018 Transition Plans

August 7th, 2017|0 Comments

    FOR IMMEDIATE RELEASE August 7, 2017 Contact: Clifford Gorski Director of Communications 412.793.8077 cliff@umdf.org UMDF CEO/Executive Director Charles A. Mohan, Jr., Announces 2018 Transition Plans Search will begin in late 2017 for [...]

408, 2017

UMDF Grant Recipients Awarded

August 4th, 2017|0 Comments

FOR IMMEDIATE RELEASE August 4, 2017 Contact: Clifford Gorski Director of Communications 412.793.8077 cliff@umdf.org UMDF RESEARCH GRANT RECIPIENT AWARDS FOUNDATION MAKES $625,000 SCIENTIFIC INVESTMENT TOWARDS TREATMENTS AND CURES (Alexandria, VA)  As part of its [...]

2707, 2017

UMDF Honors Volunteers With National Awards

July 27th, 2017|0 Comments

      FOR IMMEDIATE RELEASE July 27, 2017 Contact: Clifford Gorski Director of Communications 412.793.8077 cliff@umdf.org (Alexandria, VA)   At its annual international mitochondrial disease symposium, Mitochondrial Medicine 2017, the United Mitochondrial Disease Foundation [...]

2607, 2017

Nine years and $147,000 later, they’re still running strong for Raley

July 26th, 2017|0 Comments

Click here to see the Kirby's story

2407, 2017

UMDF, MitoAction, Foundation for Mitochondrial Medicine Statement Charlie Gard

July 24th, 2017|0 Comments

The thoughts and prayers of the entire mitochondrial disease community are with Charlie Gard and his mother and father, Chris Gard and Connie Yates.  They have decided to withdraw their request to have little [...]

2407, 2017

Charlie Gard’s Parents End Legal Fight To Bring Child To The United States

July 24th, 2017|0 Comments

Click here to see story.

1807, 2017

5 Things to Know About the Experimental Therapy for Charlie Gard

July 18th, 2017|0 Comments

See the story - click  here

1107, 2017

UMDF, MitoAction, Foundation for Mitochondrial Medicine Joint Statement on Charlie Gard

July 11th, 2017|0 Comments

The plight of UK baby Charlie Gard has brought visibility of mitochondrial disease to the world. While many are unfamiliar with the disease, no one can live without mitochondria—tiny cellular powerhouses, essential for energy [...]

307, 2017

UMDF Statement on Charlie Gard

July 3rd, 2017|0 Comments

UMDF Statement on Charlie Gard Our hearts go out to the Gard family in the U.K. They are in a position that no parent should ever have to experience and our thoughts are [...]

1606, 2017

Stealth BioTherapeutics to Present Top-Line Data From MMPOWER-2 Phase 2 Continuation Trial at UMDF Symposium

June 16th, 2017|0 Comments

Click here to read the release from Stealth BioTHerapeutics.

106, 2017

New Database May Help Diagnose and Predict Outcomes of Mitochondrial Diseases

June 1st, 2017|0 Comments

Click here to view story!

2605, 2017

Managing Mitochondrial Diseases: Elusive Standardization May Be at Hand

May 26th, 2017|0 Comments

https://consultqd.clevelandclinic.org/2017/05/managing-mitochondrial-diseases-elusive-standardization-may-hand/

805, 2017

Congratulations Dr. Doug Wallace on receiving the Benjamin Franklin Medal in Life Science

May 8th, 2017|0 Comments

Dr. Wallace receives the Benjamin Franklin Medal in Life Science.  Click here for the story.

405, 2017

Congratulations Dr. Nunnari on your election to the National Academy of Sciences

May 4th, 2017|0 Comments

Click here to see the article

2404, 2017

UMDF Announces formation of Industry Advisory Council

April 24th, 2017|0 Comments

Click here to see the story

2903, 2017

LHON Artist Featured in the New Yorker

March 29th, 2017|0 Comments

http://www.newyorker.com/magazine/2017/03/27/michael-anthony-simons-spiderweb-paintings

2303, 2017

Exercise Benefits Your Mitochondria

March 23rd, 2017|0 Comments

https://www.nytimes.com/2017/03/23/well/move/the-best-exercise-for-aging-muscles.html?_r=0  

803, 2017

News for all of us – Exercising Keeps Your Mitochondria Fit

March 8th, 2017|0 Comments

News for all of us - Exercising Keeps Your Mitochondria Fit

1201, 2017

Penn State Brandywine Professor Awarded NSF Early Career Grant for Mitochondrial Work

January 12th, 2017|0 Comments

Click here to see story.

1201, 2017

Mitochondria Appear Good Treatment Target for Stroke and TBI Recovery

January 12th, 2017|0 Comments

Click here to see the story

812, 2016

21st Century Cures Act on way to President’s Desk

December 8th, 2016|0 Comments

Click here to see story.

1909, 2016

U.S. Health and Human Services to provide more information about clinical trials

September 19th, 2016|0 Comments

U.S. Health and Human Services takes steps to provide more information about clinical trials to the public In an effort to make information about clinical trials widely available to the public, the U.S. Department of [...]

2908, 2016

NORD Publishes Physician Guide to Mitochondrial Myopathies

August 29th, 2016|0 Comments

National Organization for Rare Disorders and Rare Disease Experts Publish Guide to Promote Diagnosis and Treatment for Patients DANBURY, CT--(Marketwired - June 28, 2016) - As part of its ongoing series to promote physician awareness [...]

1806, 2016

UMDF Awards Half Million Dollars in Research at Mitochondrial Medicine 2016

June 18th, 2016|0 Comments

(Seattle, WA) The United Mitochondrial Disease Foundation awarded $500,000 in research grants to projects designed to bring faster treatments and cures for mitochondrial disease patients. The grant awards were presented at the UMDF’s Mitochondrial Medicine [...]

1706, 2016

UMDF Volunteer Awards Announced

June 17th, 2016|0 Comments

At its 20th Anniversary Banquet at Mitochondrial Medicine 2016, the United Mitochondrial Disease Foundation (UMDF) honored several of its volunteers for their role in helping the entire mitochondrial disease community move closer to treatments and cures.  [...]

1706, 2016

Community Reacts to Stealth BT Encouraging News

June 17th, 2016|0 Comments

Stealth BioTherapeutics announced positive results from its MMPOWER mitochondrial myopathy trial Mitochondrial disease organizations across the United States and Canada are thrilled with the results. "Today's news from the Stealth BioTherapeutics trial represents far more [...]

1606, 2016

Stealth Bio Therapuetics Reports Positive Data

June 16th, 2016|0 Comments

Stealth Bio Therapeutics Reports Positive Data in First-Of-Its- Kind Primary Mitochondrial Myopathy Trail. Announcement made at the UMDF's Mitochondrial Medicine 2016 Symposium in Seattle See Details Here

1302, 2015

Mitochondrial Myopathy Trial

February 13th, 2015|0 Comments

  Stealth BioTherapeutics announced the start of a new clinical trial for patients with Mitochondrial Myopathy. On February 13, 2015, Stealth BIOTHERAPEUTICS CEO Travis Wilson detailed the new clinical trial, outlined which patients are eligible, [...]