Regional Mitochondrial Medicine 2017: Akron, OH
Clinical/Medical Sessions: Friday, October 13, 2017
Patient/Family Sessions: Saturday, October 14, 2017
Akron Children’s Hospital
Regional Mitochondrial Medicine 2018: San Diego, CA
Clinical/Medical Sessions: Friday, February 23, 2018
Patient/Family Sessions: Saturday, February 24, 2018
UC San Diego Department of Neurosciences
Center for Neural Circuits and Behavior (CNCB), Large Conference Room
9500 Gilman Drive
La Jolla, CA 92093
Course Chair: Richard Haas, MB BChir
Over the past 15 years, the UMDF has witnessed many changes in educational programming specific to mitochondrial medicine. In 2000, the UMDF hosted its first symposium and at that time, there was only one other entity, Mitochondrial Medicine Society (MMS), offering a conference dedicated solely to mitochondrial medicine in the United States.
The physician audience for the international symposium is typically limited to researchers, and those mitochondrial specialists interested in research, due to the scientific content. Upon review of past attendees at the UMDF international symposium and through strategic planning discussions, the UMDF realized it was missing a very important target audience, the local specialists treating mitochondrial patients. The UMDF added a “Grand Rounds” program in 2008 which brings a mitochondrial specialist to the hospitals to speak to neurologists and geneticists during their regularly scheduled monthly CME programs.
While the Grand Rounds program has been very successful, it is somewhat limited as the hospitals typically only offer one hour time slots. The UMDF Scientific and Medical Advisory Board (SMAB) advised the foundation that the one hour grand rounds sessions were just not sufficient in providing the necessary information to gain a better understanding of managing a patient with mitochondrial disease.
The UMDF is proud to enhance our educational programming through regional symposia and will introduce it in key locations across the United States. The new program will offer a full day CME activity on Friday and a half day of sessions for patients/families on the following Saturday. Both groups will come together for a Friday night reception to encourage networking and exchange of information. The UMDF hopes to see this program build in the coming years – not only through our efforts but also by collaborating with other organizations to reach as many clinicians and allied health as possible. Together, we will make a difference in the lives of patients/families struggling with mitochondrial disease.