For more than 20 years, the United Mitochondrial Disease Foundation has been the largest non-governmental funder of research focused on the development of treatments and cures for mitochondrial disease. In that time, through the hard work and dedication of our patients, their families, and donors, UMDF has enabled nearly $12 million in scientific research that demonstrably advanced the knowledge and understanding of mitochondrial biology while also seeding follow-on funding in excess of $100 million.
UMDF will launch a new grant cycle before the end of 2018, intending to fund postdoctoral fellows, young investigators and experienced principal investigators. The RFA will be broadly written to include basic, translational and clinical research on any aspect/type of mitochondrial disease. Proposals will be collected in Q1 2019 and funding decisions made in Q2 2019.
Separately a multi-year Roadmap Project focused on Leigh Syndrome is in development in collaboration with international funding partners. An International Steering Committee has been formed and will create first funding mechanisms by the end of 2018. Projects will be developed around the three main pillars of the UMDF Roadmap to a Cure for mitochondrial disease: improved diagnosis, development of treatments and cures, and optimized clinical care.