Resources, Answers & Support
We know you’re seeking answers. UMDF is here to educate in difficult times, provide helpful resources and offer caring support. Connect with our Patient Concierge or contact our Support Line at (888) 900-6486 weekdays from 8:00am to 5:00pm EST.
A Patient Concierge can connect you with a local mito family or a UMDF Support Ambassador from our national network of volunteers.
Mitochondrial Care Network: New Patient Guide
Find a Doctor
From webcasts to podcasts, UMDF keeps you connected and informed on the latest in mitochondrial disease.
Ask the Mito Doc
Clinicians answer your questions in this monthly webcast series to help patients and families connect with the mitochondrial disease medical community.
This ongoing seminar series brings the global scientific community together to discuss mitochondrial disease research.
Visit our library of on-demand videos and curated articles to better navigate and understand a mitochondrial disease diagnosis.
The Powerhouse Podcast
Tune in as UMDF CEO, Brian Harman, and UMDF Science & Alliance Officer, Dr. Phil Yeske, chat with interesting people in the mito community.
Travel Tips for Mito Families
UMDF ambassadors and partners at the University of Minnesota have put together tips for mito patients and their loved ones as they prepare to hit the road (or skies).
- Mito Travel Guide: reminders on managing care, packing and flying.
- Travel Checklist: a suggested packing list and advice for patients traveling for the first time.
Courtesy of University of Minnesota, Orphan Drug Research Course – Student Team “Blue Genes” and UMDF Ambassadors.
Virtual Support Services Available
UMDF Support Group
Meetings & Events
From young adult happy hours to disease specific meetings, UMDF hosts virtual events across the U.S. so you can engage with other patients and families.
UMDF Mito Grief Mentors
Inspire Mito Energy Connection
A peer-to-peer online support and discussion community to gather and share information about genetic testing, family issues and more.
Attend Mitochondrial Medicine Symposium
Discover an entire community of resources and support services during UMDF’s annual Symposium. As the world’s preeminent event for mitochondrial disease, the Symposium gives patients and families the opportunity to meet some of the top clinical mitochondrial specialists from around the world and attend social events to network with others who share your journey.
“Through the magic of social media, I was connected with UMDF Support Ambassador Stacy. She has been so welcoming and ready to share any and all her knowledge and experiences with me. She connected me with other families, which has been invaluable during the ups and downs of my daughter’s diagnosis process.” Kristen • Hanover, PA