Registration – Symposium 2020

For Additional Banquet Tickets, Click Here
For Additional Banquet Tickets, Click Here

2020 Fee Information

Patient/Family Program Fees – Click Here to Register

Rates Early Bird Rates After May 31
Weekend Rate – Adults $115 $230
Weekend Rate – Young Adults (19-35 year olds attending both Teen AND Adult Sessions) $90 $100
Weekend Rate – Teens (13-18 year olds attending Teen Sessions ONLY) + meals $35 $45
Daily Rate – Friday $60 $120
Daily Rate – Saturday $60 $120

Should you need registration assistance, please complete a scholarship application. Click Here.

Scientific Program Fees – Click Here to Register

Rates Early Bird Rates After May 31
Physician/Researcher Rate $825 $925
*Non Physician Rate $450 $550
Genetic Counselor Rate (Plus $25 Filing Fee) $475 $575
Daily Rate – Wednesday (banquet not included) $200 $225
Daily Rate – Thursday (banquet not included) $200 $225
Weekend Rate (Fri-Sat) $575 $610
Industry Rate $1000 $1100

Non Physician Rate is limited to RNs, Allied Health Professionals,*Residents/Fellows/Students. (Letter from program director must be received in our office prior to registration to receive this fee.) Physician/Researcher, Non Physician, Genetic Counselor and Industry Rates cover four days of meetings, electronic course syllabus, daily continental breakfast, poster receptions, refreshment breaks, lunches, and Friday Night Banquet. Weekend Rate includes Fri/Sat Sessions and Meals, electronic syllabus, and Friday Night Banquet.

Cancellation Policy

All cancellations will be subject to a service charge based on registration fee amounts – a small percentage must be deducted to cover processing charges to the foundation. A written notification of cancellation must be made to UMDF in order to process any refunds. No refunds will be issued after Friday, June 26, 2020.

Symposium Links

Sponsor Today!

Contact Beth Whitehouse at for more information on sponsorship opportunities

Every time I attend it gets better and better . . . speakers, networking, etc. and especially the last 2-3 years, clinical trial/studies part of program. Great to see more in attendance!
Gail Wehling, Illinois
Talking with doctors and researchers! So helpful. Teen sessions… My kids loved feeling a part of a group of teens that were “like them.”
Laura Ursiny, Michigan
For our family, this symposium was transformational. We have been given hope. For our daughter, she now has friends who get her!
Patti Wood, California