Registration – Symposium 2018 2017-10-13T16:06:39+00:00

Registration – Symposium 2018

2017 Fee Information (NOTE: 2018 Fees will be posted soon).

Through the generosity of PNC Charitable Trust, Reata Pharmaceuticals and Tishcon, the UMDF is pleased to offer special discounted rates through May 27, 2017.

Should you need additional financial assistance, patients may also apply for scholarship. Click here for scholarship information. >>

Patient/Family Program Fees

Category Early Bird Rates After May 27
Individual Registration $115 $225
Family Registration   (2 adults/same household) $225 $450
Teen Sessions FREE!! FREE!!
Daily Rates (banquet & syllabus not included) $42 $85
Daily Rate – LHON Program (banquet & syllabus not included) $42 $85
Family Course Syllabus $15 $15
Additional Friday Night Banquet Tickets $65/person $65/person

Individual and Family Registration Rates include syllabus, daily continental breakfast, refreshment breaks, two lunches and Friday’s banquet.

Scientific Program Fees

Physician/Researcher $825
UMDF/MMS/MRS/MiP Members (discount rate) $775
RNs, Genetic Counselors (GCs)**, Allied Health Professionals, Resident, Fellow*, Students $450

Daily Rates (Banquet not included)

Additional Friday Night Banquet Tickets $75/person

A $100 late fee will automatically be added to any registrations received on-line after registration deadline (5/27/2017).
(* Letter from program director must be received in our office prior to registration to receive this fee.)

(** Genetic Counselors – If you want CEU credit, you must pay an additional $25 CEU filing fee.)

Cancellation Policy

All cancellations will be subject to a service charge based on registration fee amounts – a small percentage must be deducted to cover processing charges to the foundation. A written notification of cancellation must be made to UMDF in order to process any refunds. No refunds will be issued after Friday, June 26, 2017.

Symposium Links

Every time I attend it gets better and better . . . speakers, networking, etc. and especially the last 2-3 years, clinical trial/studies part of program. Great to see more in attendance!
Gail Wehling, Illinois
Talking with doctors and researchers! So helpful. Teen sessions… My kids loved feeling a part of a group of teens that were “like them.”
Laura Ursiny, Michigan
For our family, this symposium was transformational. We have been given hope. For our daughter, she now has friends who get her!
Patti Wood, California