Registration – Symposium 20192018-08-28T14:50:35+00:00

Registration – Symposium 2019


2018 Fee Information

Patient/Family Program Fees

Category Early Bird Rates After May 31
Individual Registration $115 $230
Family Registration   (2 adults/same household) $225 $450
Teen Sessions FREE – **Meals/Dance $35 $45
Daily Rates (banquet & syllabus not included) $42 $85
LHON Rate (banquet & Friday lunch not included) $42 $85
Industry Rate – Family Program $400 $500
Additional Friday Night Banquet Tickets $65/person $65/person

Individual and Family Registration Rates include syllabus, daily continental breakfast, refreshment breaks, Thursday LHON sessions, Fri/Sat lunch, and Friday’s banquet.  LHON rate includes Thursday lunch, Thursday afternoon sessions, and Friday morning sessions.

**Teen Sessions are FREE but meals/dance have a nominal fee.  Should your teen(s) need assistance, please complete a scholarship form for them.

Scientific Program Fees

Category Early Bird Rates After May 31
Physician/Researcher $825 $925
*Non Physician Rate $450 $550
Genetic Counselor Rate and $25 Filing Fee $475 $575
Daily Rates (banquet not included) $175 $200
 Industry Rate  $900  $1000

This rate is limited to RNs, Allied Health Professionals, *Residents/Fellows/Students. (Letter from program director must be received in our office prior to registration to receive this fee.) Physician/Researcher, Non Physician, Genetic Counselor and Industry Rates cover four days of meetings, electronic course syllabus, daily continental breakfast, refreshment breaks, lunches, and Friday Night Banquet.

Cancellation Policy

All cancellations will be subject to a service charge based on registration fee amounts – a small percentage must be deducted to cover processing charges to the foundation. A written notification of cancellation must be made to UMDF in order to process any refunds. No refunds will be issued after Friday, June 26, 2019.

Symposium Links

Sponsor Today!

Contact Beth Whitehouse at for more information on sponsorship opportunities

Every time I attend it gets better and better . . . speakers, networking, etc. and especially the last 2-3 years, clinical trial/studies part of program. Great to see more in attendance!
Gail Wehling, Illinois
Talking with doctors and researchers! So helpful. Teen sessions… My kids loved feeling a part of a group of teens that were “like them.”
Laura Ursiny, Michigan
For our family, this symposium was transformational. We have been given hope. For our daughter, she now has friends who get her!
Patti Wood, California