August 7, 2017
Contact: Clifford Gorski
Director of Communications

UMDF CEO/Executive Director Charles A. Mohan, Jr., Announces 2018 Transition Plans

Search will begin in late 2017 for successor to lead mission of UMDF

 (Pittsburgh, PA) After serving the mitochondrial disease community for more than two decades, United Mitochondrial Disease Foundation (UMDF) Chief Executive Officer and Executive Director, Charles A. Mohan, Jr., has announced that he will transition from his role as CEO/Executive Director at the end of 2018.  Mohan made the announcement to the UMDF Board of Trustees and to foundation staff.  For more than 23 years, beginning in the basement of his home, Mohan began as a volunteer, a member of the Board of Trustees, and has been in his current role as CEO since 2006.

“What Chuck has accomplished at UMDF is nothing short of astounding”, said Brent Fields, Chairman of the UMDF’s Board of Trustees and CEO of Big Brothers and Big Sisters of Austin, TX.  “When he was starting out in the 90’s and talking about the disease, people would ask ‘mito what’?”  Under Mohan’s leadership, Fields says UMDF is funding scientists and researchers who are creating clinical trials and potential treatments for the disease.  Patient voices are being heard at the NIH and in Congress. “This is only possible because Chuck said yes two decades ago to creating, building and nurturing the success of the UMDF,” Fields added.

Current Honorary Board Member, John DiCecco, has known Mohan and his family years before the UMDF’s founding.  “I believe Chuck to be a pioneer,” DiCecco said. “Chuck’s vision to create an organization that provides help, hope, answers, and research where there was none is such a powerful legacy for the entire community,” DiCecco said.

Chuck Mohan said, “We began with one primary focus; to find a cure.  We have sharpened that focus to three main objectives; Diagnostic Development, Coordinated Patient Care and Therapeutic Development. We’ve made much progress only to realize we have a long way to go and I look forward to staying involved in the “Quest Toward a Cure.”

Mohan will remain CEO and Executive Director through the search process, scheduled to launch in November 2017.  A successor is expected to be announced in May 2018.  The Search Committee of UMDF has engaged executive recruiting firm Nonprofit Talent to assist with the search for the next CEO.