UMDF Connect
Meet the Villasenor Family
Celebrations this holiday season will be very different for the Villaseñor family. As parents of a child with mitochondrial disease, Faustino ‘Tino’ and Kristin Villaseñor will share the joy and warmth of the season with family and friends, but they will visit online or safely separated by their living room window.
Meet Kristi
It’s possible that Kristi Dellinger has mitochondrial disease – she’s just not sure.
Path To A Cure
When you create your brick, you help us build the path to towards faster treatments and cures.
UMDF Financial Statements
UMDF Financial Statements
Ask The Mito Doc Webcast Series – Making the Most of the Holidays and Stress Research
If you missed the October 2020 ‘Ask the Mito Doc’ webcast, Making the Most of the Holidays, you can watch the replay here.
Beklow is a list of questions asked during the webcast and answered by our panel.
COVID-19 and Isolation for our Adult Patient Community
The following tips were provided by Gail Wehling and Joy Krumdiack, UMDF Ambassadors.
Energy for Life Virtual Teams
Our Energy for Life Walkathons have gone virtual. We are proud to welcome these amazing teams who have registered and are fundraising to help us fund our mission.
Meet Andy
Andy Marks is a skier, a boxer and a bowler. He also enjoys movies, plays backgammon and is a stand-up comedian. His activities don’t seem too far out of the norm for a 31 year old. The difference is that Andy is blind. Andy is living with Leber’s hereditary optic neuropathy (LHON).
Meet The Hall Family
“Nina faces challenges every day. I wanted to honor Nina by pushing myself with something I love to do and the things she can’t.”
Meet Ryan
UMDF’s 2020 Energy Award winner is Ryan Eberly from Gordonville, PA. Ryan first learned about UMDF shortly after he was diagnosed eight years ago with CPEO Plus with mitochondrial myopathy which was caused by a POLG mutation.