UMDF supports The National Organization for Rare Disorders (NORD)Ⓡ, in their new campaign for Rare Disease Day centering on three simple words: Show Your Stripes.  The campaign is a call to action for people to literally and figuratively “show their stripes” in support of rare diseases leading up to and on Rare Disease Day, which will be observed on February 28th this year.

The zebra is the official symbol of rare diseases in the United States and is noted for its black and white stripes, which are central to its uniqueness. Everyone has his/her own stripes, those characteristics that make each individual distinct. While each of the more than 7,000 rare diseases are unique, there are many commonalities that unite the rare disease community. In the spirit of raising awareness regarding rare disease issues and celebrating Rare Disease Day.

What can you do to participate?

  • Wear stripes on Rare Disease Day to show solidarity in rare disease awareness and education, and to share that message.
  • Collect and share photos, stories and videos of individuals and their colleagues, friends and families all wearing their stripes together on social media using the hashtags #showyourstripes and #rarediseaseday.
  • Use the Show Your Stripes social media profile frame.
  • Host an event (virtual or live) in your community to bolster interest and knowledge for the rare disease cause.

“At NORD, we are very proud to have been the flag bearer of Rare Disease Day in the U.S. for the past ten years,” said Peter L. Saltonstall, President and CEO of NORD. “Now we are upping the ante with the Show Your Stripes campaign, which has a goal of increasing attention on rare diseases beyond the existing community and spreading it to the world at large. This is the start of a new wave of awareness and next-generation advocacy that we hope will become a part of Rare Disease Day for years to come, and we invite everyone to get involved.”

UMDF encourages all in our community to “show your stripes” on Rare Disease Day.   To find out how you can get involved, click here.