A Message From President & CEO Brian T. Harman
2021 is an important year and milestone in the history of the United Mitochondrial Disease Foundation; it is UMDF’s 25th Anniversary. As...
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Ask The Mito Doc Webcast Series – Special Coronavirus Update
If you missed the February 2021 Ask the Mito Doc webcast, ‘Special Coronavirus Update’ watch the replay below. Dear Patient...
Read moreGenetic Alliance Webinar with Dr. Francis Collins, Director of the National Institutes of Health (NIH)
On Saturday, February 20, 2021, at Noon Eastern Time, Francis Collins, MD, PhD, Director of the National Institutes of Health, will share with...
Read moreDonor Spotlight – The Students At Divine Mercy Academy
Students at Divine Mercy Academy, formerly known as St. Bernadette Catholic School, know it’s close to Catholic Schools Week when the special...
Read moreMitochondrial Medicine Society Response to COVID19 Vaccine
Patients with mitochondrial disease and families have many questions about the new COVID-19 vaccine(s), including whether to take it? Whether...
Read moreAsk The Mito Doc Webcast Series – Clinical Trial Updates and Patient Registries
If you missed the January 2021 ‘Ask the Mito Doc’ webcast, ‘Clinical Trial Updates and Patient Registries’ watch the...
Read moreLetter to State Health Officials Regarding Vaccine Access for Patients with Mitochondrial Disease and Metabolic Disorders
Access to COVID-19 Vaccines for the Mitochondrial Disease Community and Patients with Metabolic Disorders January 4, 2021 Dear...
Read moreAsk The Mito Doc Webcast Series – Diet and Nutrition -Managing Mitochondrial Disease Through the Holidays
If you missed the December 2020 ‘Ask the Mito Doc’ webcast, ‘Diet and Nutrition – Managing Mitochondrial Disease...
Read moreSARS-CoV-2/COVID-19, COVID-19 Vaccines and Mitochondrial Disease
SARS-CoV-2/COVID-19, COVID-19 Vaccines and Mitochondrial Disease Updated November 24, 2020 There have been questions posed to UMDF regarding...
Read moreExternally-led Patient-Focused Meeting on Mitochondrial Disease
The “Voice of the Patient” Report The Externally-led Patient-Focused Drug Development meeting focusing on mitochondrial disease was...
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