Advocacy Update – March 2023: Federal Appropriations 101 and Why Advocacy Matters for Mito
On Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
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Reata Pharmaceuticals Announces FDA Approval of SKYCLARYS™ (Omaveloxolone) for Friedreich’s Ataxia. Learn What this Means for the Mito Community.
Cyclerion Therapeutics to Discuss CY6463 MELAS Clinical Data at a Webinar Hosted by United Mitochondrial Disease Foundation Company to...
Read moreResearch Update from 2015 UMDF Grant Recipient Sara Nowinski, PhD
In 2015, Sara Nowinski, PhD received a $70,000 grant award for her work “Characterizing the Function of the Atypical Mitochondrial Kinase...
Read moreAdvocacy Update – February 2023: Could ARPA-H Change the Research Landscape for Rare Diseases?
On Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
Read moreAdvocacy Update – January 2023: What Does 2023 Hold for Mito Advocacy?
On Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
Read moreAdvocacy Update – December 2022: Mito Research Funding Looks Headed for Renewal in Newly Unveiled Funding Bill
On Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
Read moreaccelerators Research Update from Rachel Guerra, PhD, UMDF Funded Runner-Up from Big Pitch 2019
Research Update At the very first The Big Pitch Event at the UMDF Symposium for Mitochondrial Medicine in 2019, three candidates had five...
Read moreAdvocacy Update – September 2022: Three Things You Should Ask of Congress as We Wrap Up World Mitochondrial Disease Week
This week, as part of World Mitochondrial Disease Week, UMDF President & CEO Brian Harman caught up with the offices of several members of...
Read moreUMDF Marks World Mitochondrial Disease Week, September 18 – 24, 2022
This week, as part of World Mitochondrial Disease Week, UMDF President & CEO Brian Harman caught up with the offices of several members of...
Read moreUMDF Brings Awareness, Support for Patients and Families on TK2d Tuesday — Sept. 13, 2022
This Tuesday, September 13 is TK2d Tuesday, a day to bring awareness to a rare genetic mitochondrial disease, Thymidine kinase 2 deficiency....
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