UMDF Reacts to Today’s Historic FDA Listening for the Mitochondrial Disease PDCD
With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read moreLatest News -Press Room
Energize the Fight – World Mitochondrial Disease Week 2023
With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read moreBack to School Resources for Mito Families
With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read moreVideo Assessment for Primary Mitochondrial Myopathy (PMM) and PolG patients, conducted by research firm Casimir/Emmes
Video Assessment for PMM and PolG patients This study, “Development of the Mitochondrial Video Assessment (MVA) as an Outcome Measure for the...
Read moreUMDF Celebrates the 2023 Vanguard Award Winner Robert Naviaux, MD, PhD
Above: Richard Haas, MD, presents Robert Naviaux, MD, PhD, with the 2023 Vanguard Award. The UMDF Vanguard Award is presented to a scientist or...
Read moreAdvocacy Update – May 2023: What Does the End of the Public Health Emergency Mean for Medicaid?
On Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
Read moreUpdated COVID-19 Recommendations from UMDF’s Science & Medical Advisory Board – May 2023
COVID-19 updates 2023 Although the COVID-19 pandemic is declared over, the COVID-19 virus is still causing illness and death in the United...
Read moreResearch Update from 2013 UMDF Grant Recipient James Stewart, PhD
Funding nearly $15 million in research – research that is often underfunded but critical to the diagnosis and treatment of patients with...
Read moreAdvocacy Update – April 2023: Spring on Capitol Hill
On Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
Read moreAdvocacy Update – March 2023: Federal Appropriations 101 and Why Advocacy Matters for Mito
On Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
Read more