Patients & Families are Our Focus

Learn More About Us

Our Story

During the past 25 years, UMDF has built a network of the top clinicians, hospitals and researchers dedicated to fighting mitochondrial disease. We are driven by a nationwide community of ambassadors solely focused on supporting patients and families affected by mitochondrial disease. Together, we are committed and energized to make a difference by funding the best science no matter where it is found in the world and providing critical programs and services to the patient families we serve.

Our Mission

Promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

How We Make a Difference

Our Impact

ambassadors across the US to support patient families

research labs with funded projects

million dollars generated in goverment grants as a result of our investment

How We Make a Difference

Our Impact

ambassadors across the US to support patient families

research labs with funded projects

million dollars generated in goverment grants as a result of our investment

The work done through UMDF is making an impact. Our Community Impact Report shares courageous stories, difference makers and how your donations are put to work every day.

See our latest audited financial statements and Form 990 reports here.

Meet Our People

UMDF Leadership Team

Brian Harman

Brian Harman

President & CEO

Mark Campbell

Mark Campbell

Chief Financial Officer

Philip Yeske, PhD

Philip Yeske, PhD

Science & Alliance Officer

Cliff Gorski

Cliff Gorski

Director of Communications

Tania Hanscom

Tania Hanscom

Special Event Manager

Kara Strittmatter MA/CMM

Kara Strittmatter MA/CMM

Meeting/Event Director

Beth Whitehouse

Beth Whitehouse

Director of Development

Meet Our People

UMDF Leadership Team

Brian Harman

Brian Harman

President & CEO

Mark Campbell

Mark Campbell

Chief Financial Officer

Philip Yeske, PhD

Philip Yeske, PhD

Science & Alliance Officer

Cliff Gorski

Cliff Gorski

Director of Communications

Tania Hanscom

Tania Hanscom

Special Event Manager

Kara Strittmatter MA/CMM

Kara Strittmatter MA/CMM

Meeting/Event Director

Beth Whitehouse

Beth Whitehouse

Director of Development

We Are An Experienced Team

Our Staff

Barb Cullaj

Administrative
Assistant

Donna Nameth

Data Entry
Manager

Cassie Franklin

Donor Relations
Specialist

Anne Simonsen

Regional
Coordinator

Jeff Gamza

Multimedia
Manager

Melinda O’Toole

Database
Administrator

Katarina Gray

Science Project
Coordinator

Janet Owens

Executive Administrative
Assistant

Margaret Moore

Support & Education
Associate

Nicole Wilson

Regional
Coordinator

Industry Advisory Council Leadership

Our Many Thanks

Honorary Board 

Jack Black

John DiCecco

Salvatore DiMauro

Charles Hoppel

Dan Wright

Proud to Partner

Affiliate Organizations

Join our Team!

UMDF is always looking for talented individuals.