UMDF Connect
Clinical Trials Update – Astellas ASP0367
on April 8, 2021. Dr. Phil Yeske, UMDF Science and Alliance Officer…
Mito Champion Spotlight – Caitlin Baran
There doesn’t seem to be a sport that Caitlin Baran hasn’t tried. The State College, PA, resident has competed in track and field, bocce, golf, swimming, and tennis. She plays ice hockey and hopes her future will include a competitive snow shoe event.
Ask The Mito Doc Webcast Series – Special Coronavirus Update
If you missed the February 2021 “Ask the Mito Doc” webcast,
Genetic Alliance Webinar with Dr. Francis Collins, Director of the National Institutes of Health (NIH)
On Saturday, February 20, 2021, at Noon Eastern Time, Francis Collins, MD, PhD, Director of the National Institutes of Health, will share with us why it is critical that individuals living with chronic diseases and conditions receive the coronavirus vaccine.
Donor Spotlight – The Students At Divine Mercy Academy
Students at Divine Mercy Academy, formerly known as St. Bernadette Catholic School, know it’s close to Catholic Schools Week when the special plastic jugs start appearing on their teachers desks. For the past 20 years…
Mitochondrial Medicine Society Response to COVID19 Vaccine
There have been questions posed to UMDF regarding recommendations about people with
mitochondrial disease receiving one of the COVID-19 vaccines in development. As of this date,
Letter to State Health Officials Regarding Vaccine Access for Patients with Mitochondrial Disease and Metabolic Disorders
As the leading advocacy group representing patients with mitochondrial disease or metabolic disorders, we thank your state health department for its ongoing efforts to distribute COVID-19 vaccinations equitably and effectively. We respectfully write to encourage you to include individuals living with mitochondrial disease or other metabolic disorders as a priority in the administration of any FDA-approved or authorized COVID-19 vaccine.
SARS-CoV-2/COVID-19, COVID-19 Vaccines and Mitochondrial Disease
There have been questions posed to UMDF regarding recommendations about people with
mitochondrial disease receiving one of the COVID-19 vaccines in development. As of this date,
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Meet the Villasenor Family
Celebrations this holiday season will be very different for the Villaseñor family. As parents of a child with mitochondrial disease, Faustino ‘Tino’ and Kristin Villaseñor will share the joy and warmth of the season with family and friends, but they will visit online or safely separated by their living room window.