UMDF Connect
UMDF Launches WCG CenterWatch iConnect Clinical Trial Finder Tool
UMDF Launches WCG CenterWatch iConnect Clinical Trial Finder Tool Specific to Mitochondrial Disease Pittsburgh, PA (December 15, 2021) - The United Mitochondrial Disease Foundation (UMDF) is pleased to announce a new clinical trials finder tool specific to...
LHON Awareness Day – Meet Michael Malecha, Mito Warrior
I learned in 7th grade that the mitochondria are the powerhouse of your cells. I didn’t really understand stand why until August 25, 2014, when I was told I’d be legally blind in 6 to 8 weeks. I found out
SMAB COVID-19 ‘Back to School’ Recommendations for Patient Families
As students return to the classroom this fall, the UMDF’s Scientific and Medical Advisory Board has issued the following recommendations for mitochondrial disease patient families.
Alan Breslow Appointed to UMDF Board of Trustees
Innovation, speed and agility are key to finding effective treatments for mitochondrial disease and accelerating the research could lead to a cure. That is why each year, the UMDF awards the accelerators prize to a promising Postdoctoral Fellow whose research project was selected by the UMDF Scientific and Medical Advisory Board as a finalist for the award.
Powerhouse Podcast Episode #6 – Unique Fundraising on Social Media
Powerhouse Podcast Episode #6 On Episode #6 of the Powerhouse Podcast, Join Brian Harman and his special co-host Tania Hanscom as they welcome their guests, Tom Grossi, Sam Washington and Grace Robinson as they discuss 'Leveraging Social Media Platforms for Good'.
2021 Stanley A. Davis Leadership Award Winners – Ann and Howard Korsen
The Stanley A. Davis Leadership Award is presented annually to a
UMDF leader who exemplifies dedication to the UMDF. The award
was created to honor the work and dedication to the organization
shown by the late UMDF Board Chairman, Stanley A. Davis.
2021 Energy Award Winner – Sebastien Cotte
The Energy Award is designed to recognize an individual who
embodies the spirit of the UMDF and its Mission: promoting
research and education for the diagnosis, treatment and cure of
mitochondrial disorders and providing support to those affected.
2021 LEAP Award Winner – Lily Finnigan
LEAP stands for Living, Encouraging, Achieving and Persisting.
The award is presented to an individual who is age 14 or older
living positively with mitochondrial disease. The awardee
overcomes daily challenges to achieve goals in career, family, and
volunteer service. The individual demonstrates a positive attitude,
hope for a brighter future, and an enthusiasm that inspires others.
2021 Heartstrings Award Winner – Jackson Adams
The Heartstrings Award recognizes a child or teen that has donated
or raised funds for the UMDF, enabling the UMDF to continue its
mission. The winner is chosen based on related criteria of age, time
invested, talents demonstrated, effectiveness, generosity and how the individual has “tugged at the heartstrings.”
Powerhouse Podcast Episode #5 – An interview with UMDF Vanguard Award Winners
Powerhouse Podcast Episode #5 Join UMDF President and CEO Brian Harman and Science and Alliance Officer Philip Yeske, Ph.D. as they catch up with six of our past UMDF Vanguard Award receipts and look back at all the progress that has been made surrounding...