UMDF Connect

Advocacy Update – April 2022

White House Releases Fiscal Year (FY) 2023 Budget Request - Big Proposed Increases for Research On Monday, March 28, 2022, President Biden released his proposed fiscal year (FY) 2023 budget. The president’s budget request starts the Congressional budget process. The...

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Symposium 2022 – Keeping You Safe

Symposium 2022: Patients and Families - Keeping You SafeUMDF Mitochondrial Medicine 2022 COVID-19 Protocols as of March 25, will include: Attendees must attest to being fully vaccinated per the CDC. Attendees must wear masks within all of the UMDF meeting space. We...

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TK2d Patient Listening Session – January 2022

TK2d Patient Listening Session – Monday, January 31, 2022  WHAT IS A PATIENT LISTENING SESSION? Patient Listening Sessions are small, informal, non-regulatory, non-public meetings that allow participants to connect with U.S. Food and Drug Administration (FDA)...

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Advocacy Update – March 2022

Omnibus Bill Includes 151-Day Extension of Telehealth Waivers Earlier this week, President Biden signed a bill to fund the government through September (the fiscal year 2022) and send humanitarian aid to Ukraine.  The bill also included several health priorities,...

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UMDF’s 2022 Congressional Outlook

United Mitochondrial Disease Foundation 2022 Congressional Outlook As it reconvenes, Congress faces a packed agenda in a legislative year that will be shortened by the upcoming midterm elections and remains buffeted by the persistent coronavirus pandemic. The list of...

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LSIC Awards Second Round of Research Grants

Leigh Syndrome International Consortium Awards Second Round of Research Grants The Leigh Syndrome International Consortium, a patient-driven research network steered by five of the world’s leading mitochondrial disease patient advocacy groups, is pleased to announce...

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UMDF Elevates TK2d Patient Voices at FDA

UMDF Elevates TK2d Patient Voices at FDA   Pittsburgh, PA (January 31, 2021) - The United Mitochondrial Disease Foundation (UMDF) – in collaboration with MitoAction and TK2 Cures – led an FDA Listening Session to help regulators understand the vital importance of...

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