UMDF Connect

Ask the Mito Doc – February 2024; Q&A

Ask the Mito Doc - February 2024 Q&A     All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action. Clinicians: Dr. Amy Goldstein, MD, Children’s Hospital of Philadelphia...

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Ask the Mito Doc – December 2023; Q&A

Ask the Mito Doc - December 2023 Q&A Wrapping Up 2023 with the Mito Docs     Clinicians: Dr. Amy Goldstein, MD, Children’s Hospital of Philadelphia Dr. Austin Larson, MD, Children’s Hospital, Colorado Dr. Divakar Mithal, MD, Children’s Hospital, Chicago...

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Advocacy Update – December 2023

UMDF Advocacy Update – Dec. 2023 The House is scheduled to be out of session until January, while the Senate is scheduled to remain in session this week to continue to work toward an agreement on funding for Ukraine, Israel, and US border reform, as well as...

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PDCD FDA Listening Session Report Now Available

On September 8, 2023, the United Mitochondrial Disease Foundation co-hosted a Patient-led Listening Session with the U.S. Food & Drug Administration for Pyruvate Dehydrogenase Complex Deficiency (PDCD) with fellow patient advocacy groups MitoAction, Hope for PDCD,...

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