2021 Energy Award Winner – Sebastien Cotte
The Energy Award is designed to recognize an individual who
embodies the spirit of the UMDF and its Mission: promoting
research and education for the diagnosis, treatment and cure of
mitochondrial disorders and providing support to those affected.
2021 LEAP Award Winner – Lily Finnigan
LEAP stands for Living, Encouraging, Achieving and Persisting.
The award is presented to an individual who is age 14 or older
living positively with mitochondrial disease. The awardee
overcomes daily challenges to achieve goals in career, family, and
volunteer service. The individual demonstrates a positive attitude,
hope for a brighter future, and an enthusiasm that inspires others.
2021 Heartstrings Award Winner – Jackson Adams
The Heartstrings Award recognizes a child or teen that has donated
or raised funds for the UMDF, enabling the UMDF to continue its
mission. The winner is chosen based on related criteria of age, time
invested, talents demonstrated, effectiveness, generosity and how the individual has “tugged at the heartstrings.”
Powerhouse Podcast Episode #5 – An interview with UMDF Vanguard Award Winners
Powerhouse Podcast Episode #5 Join UMDF President and CEO Brian Harman and Science and Alliance Officer Philip Yeske, Ph.D. as they catch up with six of our past UMDF Vanguard Award receipts and look back at all the progress that has been made surrounding...
UMDF Updates Congress on Telehealth
Before the pandemic, telehealth coverage was limited in scope. However, the Centers for Medicare & Medicaid Services (CMS) and Congress expanded coverage to encourage broad adoption of telehealth for the duration of the public health emergency. Accordingly, we have seen an exponential increase in telehealth.
Ask The Mito Doc Webcast Series – COVID Vaccine Resources for Children and Adults
With the availability of COVID-19 vaccines for patients under the age of 18, here are some of our best resources on what all patients should consider, regardless of age, in getting the vaccine. As always, you should consult your medical team first on all of your...
Finalists Announced For 2021 accelerators Prize
Innovation, speed and agility are key to finding effective treatments for mitochondrial disease and accelerating the research could lead to a cure. That is why each year, the UMDF awards the accelerators prize to a promising Postdoctoral Fellow whose research project was selected by the UMDF Scientific and Medical Advisory Board as a finalist for the award.
Meet Mito Mom Jody Thompson
As we close the month of May, we recognize all the mito moms who seem to love harder, hug tighter, fight louder, remember forever, and hold every special moment closer to their hearts. Jody Thompson of Crooksville, Ohio
Ask The Mito Doc Webcast Series – Drug Development for Mitochondrial Disease
If you missed the May 2021 “Ask the Mito Doc” webcast,
Powerhouse Podcast Episode #4 – A Conversation with Dr. Ethan Perlstein, CEO of Perlara and cure Sherpa
Powerhouse Podcast Episode #4 UMDF President and CEO Brian Harman and Science and Alliance Officer Dr. Phil Yeske talk to the highly accomplished Dr. Ethan Perlstein, CEO of Perlara and cure Sherpa, about disrupting the research and drug development model to discover...