UMDF Connect

TK2d Patient Listening Session – January 2022

TK2d Patient Listening Session – Monday, January 31, 2022  WHAT IS A PATIENT LISTENING SESSION? Patient Listening Sessions are small, informal, non-regulatory, non-public meetings that allow participants to connect with U.S. Food and Drug Administration (FDA)...

read more

Advocacy Update – March 2022

Omnibus Bill Includes 151-Day Extension of Telehealth Waivers Earlier this week, President Biden signed a bill to fund the government through September (the fiscal year 2022) and send humanitarian aid to Ukraine.  The bill also included several health priorities,...

read more

UMDF’s 2022 Congressional Outlook

United Mitochondrial Disease Foundation 2022 Congressional Outlook As it reconvenes, Congress faces a packed agenda in a legislative year that will be shortened by the upcoming midterm elections and remains buffeted by the persistent coronavirus pandemic. The list of...

read more

LSIC Awards Second Round of Research Grants

Leigh Syndrome International Consortium Awards Second Round of Research Grants The Leigh Syndrome International Consortium, a patient-driven research network steered by five of the world’s leading mitochondrial disease patient advocacy groups, is pleased to announce...

read more

UMDF Elevates TK2d Patient Voices at FDA

UMDF Elevates TK2d Patient Voices at FDA   Pittsburgh, PA (January 31, 2021) - The United Mitochondrial Disease Foundation (UMDF) – in collaboration with MitoAction and TK2 Cures – led an FDA Listening Session to help regulators understand the vital importance of...

read more

Alan Breslow Appointed to UMDF Board of Trustees

Innovation, speed and agility are key to finding effective treatments for mitochondrial disease and accelerating the research could lead to a cure. That is why each year, the UMDF awards the accelerators prize to a promising Postdoctoral Fellow whose research project was selected by the UMDF Scientific and Medical Advisory Board as a finalist for the award.

read more