UMDF Connect
Advocacy Update – March 2022
Omnibus Bill Includes 151-Day Extension of Telehealth Waivers Earlier this week, President Biden signed a bill to fund the government through September (the fiscal year 2022) and send humanitarian aid to Ukraine. The bill also included several health priorities,...
UMDF’s 2022 Congressional Outlook
United Mitochondrial Disease Foundation 2022 Congressional Outlook As it reconvenes, Congress faces a packed agenda in a legislative year that will be shortened by the upcoming midterm elections and remains buffeted by the persistent coronavirus pandemic. The list of...
LSIC Awards Second Round of Research Grants
Leigh Syndrome International Consortium Awards Second Round of Research Grants The Leigh Syndrome International Consortium, a patient-driven research network steered by five of the world’s leading mitochondrial disease patient advocacy groups, is pleased to announce...
UMDF Elevates TK2d Patient Voices at FDA
UMDF Elevates TK2d Patient Voices at FDA Pittsburgh, PA (January 31, 2021) - The United Mitochondrial Disease Foundation (UMDF) – in collaboration with MitoAction and TK2 Cures – led an FDA Listening Session to help regulators understand the vital importance of...
UMDF Launches WCG CenterWatch iConnect Clinical Trial Finder Tool
UMDF Launches WCG CenterWatch iConnect Clinical Trial Finder Tool Specific to Mitochondrial Disease Pittsburgh, PA (December 15, 2021) - The United Mitochondrial Disease Foundation (UMDF) is pleased to announce a new clinical trials finder tool specific to...
LHON Awareness Day – Meet Michael Malecha, Mito Warrior
I learned in 7th grade that the mitochondria are the powerhouse of your cells. I didn’t really understand stand why until August 25, 2014, when I was told I’d be legally blind in 6 to 8 weeks. I found out
SMAB COVID-19 ‘Back to School’ Recommendations for Patient Families
As students return to the classroom this fall, the UMDF’s Scientific and Medical Advisory Board has issued the following recommendations for mitochondrial disease patient families.
Alan Breslow Appointed to UMDF Board of Trustees
Innovation, speed and agility are key to finding effective treatments for mitochondrial disease and accelerating the research could lead to a cure. That is why each year, the UMDF awards the accelerators prize to a promising Postdoctoral Fellow whose research project was selected by the UMDF Scientific and Medical Advisory Board as a finalist for the award.
Powerhouse Podcast Episode #6 – Unique Fundraising on Social Media
Powerhouse Podcast Episode #6 On Episode #6 of the Powerhouse Podcast, Join Brian Harman and his special co-host Tania Hanscom as they welcome their guests, Tom Grossi, Sam Washington and Grace Robinson as they discuss 'Leveraging Social Media Platforms for Good'.
2021 Stanley A. Davis Leadership Award Winners – Ann and Howard Korsen
The Stanley A. Davis Leadership Award is presented annually to a
UMDF leader who exemplifies dedication to the UMDF. The award
was created to honor the work and dedication to the organization
shown by the late UMDF Board Chairman, Stanley A. Davis.