It was the offer of help from a co-worker that started a fundraiser idea that has grown into a huge golf tournament called “Go Pro for Mito.”
As a UMDF Support Ambassador, Susan helps patients and families navigate their own mito journey.
The teen/young adult meetings hosted by UMDF launched an amazing friendship and support system.
Since 2004, the Edith L. Trees Charitable Trust has generously provided $735,000 to the UMDF for patient support geared towards our younger patients.
Garry Kruger didn’t understand what was happening, but he does remember that his symptoms started in 1999.
Writers Loretta and Dave McGovern are hoping for a happy ending when it comes to research for their son, Cavan, who was diagnosed with Kearns Sayre Syndrome (KSS).
An early snowstorm along the east coast could not stop the success of the 2nd Cousins for A Cure fundraiser event at the Woodcrest Country Club in New Jersey.
The holidays are meant to be spent at home with family, building memories and traditions. For many mito families, the holidays are spent in the hospital.
Author donates the royalties from her book about a LHON patient to UMDF.