UMDF Connect

Voice of the Patient

"The Voice of the Patient" Report THANK YOU! The Externally-led Patient-Focused Drug Development meeting focused on mitochondrial disease was held on March 29, 2019. We were thrilled with the level of participation by the community! We thank all of you who took the...

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Meet the Villasenor Family

Celebrations this holiday season will be very different for the Villaseñor family. As parents of a child with mitochondrial disease, Faustino ‘Tino’ and Kristin Villaseñor will share the joy and warmth of the season with family and friends, but they will visit online or safely separated by their living room window.

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Meet Andy

Andy Marks is a skier, a boxer and a bowler. He also enjoys movies, plays backgammon and is a stand-up comedian. His activities don’t seem too far out of the norm for a 31 year old. The difference is that Andy is blind. Andy is living with Leber’s hereditary optic neuropathy (LHON).

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