Advocacy Update – January 2023: What Does 2023 Hold for Mito Advocacy?
On Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
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Advocacy Update – December 2022: Mito Research Funding Looks Headed for Renewal in Newly Unveiled Funding Bill
On Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
Read moreAdvocacy Update – September 2022: Three Things You Should Ask of Congress as We Wrap Up World Mitochondrial Disease Week
This week, as part of World Mitochondrial Disease Week, UMDF President & CEO Brian Harman caught up with the offices of several members of...
Read moreUMDF Marks World Mitochondrial Disease Week, September 18 – 24, 2022
This week, as part of World Mitochondrial Disease Week, UMDF President & CEO Brian Harman caught up with the offices of several members of...
Read moreAdvocacy Update – August 2022: The Inflation Reduction Act, Telehealth Extension, FY 2023 Appropriations and more.
The Food and Drug Administration’s (FDA) Center for Drug Evaluation and Research (CDER) announced the launch of the Accelerating Rare...
Read moreAdvocacy Update – May 2022: CDER Launches Program to Speed Development of Rare Disease Treatments
The Food and Drug Administration’s (FDA) Center for Drug Evaluation and Research (CDER) announced the launch of the Accelerating Rare...
Read moreAdvocacy Update – April 2022
White House Releases Fiscal Year (FY) 2023 Budget Request – Big Proposed Increases for Research On Monday, March 28, 2022, President...
Read moreAdvocacy Update – March 2022
Omnibus Bill Includes 151-Day Extension of Telehealth Waivers Earlier this week, President Biden signed a bill to fund the government through...
Read moreUMDF’s 2022 Congressional Outlook
United Mitochondrial Disease Foundation 2022 Congressional Outlook As it reconvenes, Congress faces a packed agenda in a legislative year that...
Read moreUMDF Updates Congress on Telehealth
Watch as we discuss this topic during a Congressional Caucus Meeting Before the pandemic, telehealth coverage was limited in scope. However,...
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