UMDF Connect
Join Our Give Energy Corporate Partners
This holiday season, we count on the generosity of corporate partners to make a difference in the lives of those affected by mitochondrial disease.
Author Donates Royalties From Book About LHON Patient
It was by coincidence that that Traci Medford-Rosow met the subject of her latest book. Her husband, Joel, was walking the couple’s dogs through their New York City neighborhood when he ran into another dog walker, Kevin Coughlin.
Meet Chaz Davis: Living With LHON
“It was that sense of accomplishment that has carried me to where I am today.” Charles ‘Chaz’ Davis remembers March 3, 2013 vividly. The University of Hartford freshman was sitting in an English class and noticed that he was having difficulty seeing out of the center...
Meet Joe McCormick, Jr.
In honor of National Blindness Awareness Month, we feature LHON patient Joe McCormick. Joe was looking toward a bright future. While in high school, he remembers that life revolved around hanging out with friends and playing sports.
Minovia Moves Fast Towards Treatment For Pearson Syndrome
UMDF’s Mitochondrial Medical Symposium has become the place where news breaks on the latest potential treatments and clinical trials. In 2019, Minovia Therapeutics, an Israeli company running the first ever cell therapy trial to treat a mitochondrial disease.
Putting Mitochondrial Disease Down for the Count
Every Wednesday night, you will find eight year old Harper Johnson in her seat at the Davis Arena in Louisville, KY. While she loves dance and will appear this year in ‘The Nutcracker,’ it’s not the ballet she is coming to see.
They’ve Been Walking for 20 Years
Lora Lacey was in her senior year of high school when she suffered a viral infection that affected her muscles. At the time, her mitochondrial disease was barely noticeable and she would not get an official diagnosis of mitochondrial myopathy until she was 19.
Chance Meeting Leads Patient To First Symposium
An online search for Kearns-Sayre Syndrome (KSS) led Rachel Godshall to attend the UMDF’s annual Symposium.
Donors Make History for accelerators Project
Project donors helped our community make history after the Big Pitch event at Mitochondrial Medicine 2019.
Four Months — Many Miles for Mito!
While mountain trail running is not new to the couple, they are putting their mitochondria to the test in honor of their daughter, the “Unstoppable Nina”, whose mitochondria are not functioning normally.