UMDF Connect
Donor Spotlight – The Students At Divine Mercy Academy
Students at Divine Mercy Academy, formerly known as St. Bernadette Catholic School, know it’s close to Catholic Schools Week when the special plastic jugs start appearing on their teachers desks. For the past 20 years…
Powerhouse Podcast Episode #1 – A Conversation Adult Patient Brandon Leach
Powerhouse Podcast Episode #1 UMDF President and CEO Brian Harman and Science and Alliance Officer Dr. Phil Yeske debut the Powerhouse Podcast with a conversation with Brandon Leach. Brandon is a resilient young adult patient navigating mitochondrial disease, college...
Mitochondrial Medicine Society Response to COVID19 Vaccine
There have been questions posed to UMDF regarding recommendations about people with
mitochondrial disease receiving one of the COVID-19 vaccines in development. As of this date,
Ask The Mito Doc Webcast Series – Clinical Trial Updates and Patient Registries
If you missed the January 20201’Ask the Mito Doc’ webcast,
Letter to State Health Officials Regarding Vaccine Access for Patients with Mitochondrial Disease and Metabolic Disorders
As the leading advocacy group representing patients with mitochondrial disease or metabolic disorders, we thank your state health department for its ongoing efforts to distribute COVID-19 vaccinations equitably and effectively. We respectfully write to encourage you to include individuals living with mitochondrial disease or other metabolic disorders as a priority in the administration of any FDA-approved or authorized COVID-19 vaccine.
Ask The Mito Doc Webcast Series – Diet and Nutrition -Managing Mitochondrial Disease Through the Holidays
If you missed the December 2020 ‘Ask the Mito Doc’ webcast, Ask The Mito Doc Webcast Series – Diet and Nutrition -Managing Mitochondrial Disease Through the Holidays, watch the replay
SARS-CoV-2/COVID-19, COVID-19 Vaccines and Mitochondrial Disease
There have been questions posed to UMDF regarding recommendations about people with
mitochondrial disease receiving one of the COVID-19 vaccines in development. As of this date,
Ask The Mito Doc Webcast Series – Keeping the Mitochondria Healthy for the Body and the Mind
If you missed the November 2020 ‘Ask the Mito Doc’ webcast, Keeping the Mitochondria Healthy for the Body and Mind, watch the replay
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Meet the Villasenor Family
Celebrations this holiday season will be very different for the Villaseñor family. As parents of a child with mitochondrial disease, Faustino ‘Tino’ and Kristin Villaseñor will share the joy and warmth of the season with family and friends, but they will visit online or safely separated by their living room window.