UMDF Connect
COVID-19 and Isolation for our Adult Patient Community
The following tips were provided by Gail Wehling and Joy Krumdiack, UMDF Ambassadors.
Energy for Life Virtual Teams
Our Energy for Life Walkathons have gone virtual. We are proud to welcome these amazing teams who have registered and are fundraising to help us fund our mission.
Meet Andy
Andy Marks is a skier, a boxer and a bowler. He also enjoys movies, plays backgammon and is a stand-up comedian. His activities don’t seem too far out of the norm for a 31 year old. The difference is that Andy is blind. Andy is living with Leber’s hereditary optic neuropathy (LHON).
Meet The Hall Family
“Nina faces challenges every day. I wanted to honor Nina by pushing myself with something I love to do and the things she can’t.”
Meet Ryan
UMDF’s 2020 Energy Award winner is Ryan Eberly from Gordonville, PA. Ryan first learned about UMDF shortly after he was diagnosed eight years ago with CPEO Plus with mitochondrial myopathy which was caused by a POLG mutation.
50 Ways to Fundraise
No event is too big or too small and every contribution powers the Roadmap to a Cure. Start a fundraising page online on our “Fundraise Your Way” DIY fundraising site or contact the UMDF Special Events Department to start your own fundraiser today!
Meet Jagger
“When I went to my first symposium, it was a really big deal, because I realized we were not alone.”
Meet Hayley
“UMDF has been a light in our life. They have supported my family in so many ways and have offered so much hope to me and to thousands of mito families.”
LHON Archive
LHON Live monthly calls are here.
LHON Live
LHON Live monthly calls are here.