While mountain trail running is not new to the couple, they are putting their mitochondria to the test in honor of their daughter, the “Unstoppable Nina”, whose mitochondria are not functioning normally.
The family received help all along their journey from family and friends, the medical community, their schools and colleges, and from the UMDF when both of their sons were diagnosed with mitochondrial disease.
From the very beginning, there has been one constant corporate sponsor at UMDF’s Energy for Life Walk in Minnesota.
Hayley is one of many patients who volunteer their time to provide support, education and resources to other patients and families. It’s a role that gives her the energy to escape her illness and help others like her.
After gathering information and knowing that her family was not alone on their journey, Melissa decided to volunteer with UMDF to ensure that patient families like her know they are not alone.
It was the offer of help from a co-worker that started a fundraiser idea that has grown into a huge golf tournament called “Go Pro for Mito.”
As a UMDF Support Ambassador, Susan helps patients and families navigate their own mito journey.
The teen/young adult meetings hosted by UMDF launched an amazing friendship and support system.
Since 2004, the Edith L. Trees Charitable Trust has generously provided $735,000 to the UMDF for patient support geared towards our younger patients.
Garry Kruger didn’t understand what was happening, but he does remember that his symptoms started in 1999.