UMDF Connect
Ask the Mito Doc – January 2023; Q&A: Conserving Your Energy in the New Year
Ask the Mito Doc - January 2023 Q&A: Conserving Your Energy in the New Year Presenter: Bettemarie Bond, Patient Advocate and Ambassador for Oley, MDA and UMDF Clinicians: Dr. Zarazuela Zolkipli-Cunningham, MD and Dr. Amy Goldstein, MD from the Children’s...
Ask the Mito Doc – December 2022: Q&A: What to Expect as an Adult Mito Patient
Ask the Mito Doc - December 2022 What to Expect as an Adult Mito Patient Clinician: Dr. Michio Hirano, MD of Columbia University Irving Medical Center in New York, NY Watch the video: Ask The Mito Doc: December 2022 - What to Expect as an Adult Mitochondrial...
Advocacy Update – December 2022: Mito Research Funding Looks Headed for Renewal in Newly Unveiled Funding Bill
On Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12 appropriations bills, including the Defense Appropriations bill. Thanks to our advocacy efforts, mitochondrial disease continues to...
Ask the Mito Doc – November 2022: Q&A: Maintaining Immune Health in Mitochondrial Disease
Ask the Mito Doc- November 2022 Maintaining Immune Health in Mitochondrial Disease Clinician: Dr. Peter J. McGuire, MS, MBBCh National Human Genome Research Institute Watch the full video: Ask the Mito Doc: November 2022 - Maintaining Immune Health in...
Ask the Mito Doc – October 2022: Q&A: Ophthalmic Manifestations of Mitochondrial Disease
Ask the Mito Doc- October 2022 Ophthalmic Manifestations of Mitochondrial Disease Clinician: Dr. Rustum Karanjia MD, PHD from the University of Ottawa Watch the full video: Ask the Mito Doc: October 2022 - Ophthalmic Manifestations of Mitochondrial Disease - YouTube...
accelerators Research Update from Rachel Guerra, PhD, UMDF Funded Runner-Up from Big Pitch 2019
Research Update At the very first The Big Pitch Event at the UMDF Symposium for Mitochondrial Medicine in 2019, three candidates had five minutes each to present their research projects over a live webcast. When the online voting concluded, Dr. Arwen Gao of Ecole...
Advocacy Update – September 2022: Three Things You Should Ask of Congress as We Wrap Up World Mitochondrial Disease Week
This week, as part of World Mitochondrial Disease Week, UMDF President & CEO Brian Harman caught up with the offices of several members of Congress to talk about mitochondrial disease and the support we need from the federal government. We wrapped up each call...
UMDF Marks World Mitochondrial Disease Week, September 18 – 24, 2022
This coming week, September 18 – 24, marks World Mitochondrial Disease Week. It provides a time for the entire mito community to share our joys, our sorrows, our hopes, and our fears. It’s a week when we can reflect on all we’ve collectively accomplished, while...
UMDF Brings Awareness, Support for Patients and Families on TK2d Tuesday — Sept. 13, 2022
This Tuesday, September 13 is TK2d Tuesday, a day to bring awareness to a rare genetic mitochondrial disease, Thymidine kinase 2 deficiency. It’s estimated up to 2,700 people in the United States are living with TK2d. We thank the many patients, families,...
Advocacy Update – August 2022: The Inflation Reduction Act, Telehealth Extension, FY 2023 Appropriations and more.
Congress Passes the Inflation Reduction Act Congress ended a busy work period after passing the Inflation Reduction Act (IRA) over the weekend. Congress has now adjourned for August recess. The Senate returns on September 6, and the House returns on September...