UMDF Launches WCG CenterWatch iConnect Clinical Trial Finder Tool Specific to Mitochondrial Disease
Pittsburgh, PA (December 15, 2021) – The United Mitochondrial Disease Foundation (UMDF) is pleased to announce a new clinical trials finder tool specific to mitochondrial disorders. With the launch of UMDF’s Mito Clinical Trials Finder tool powered by WCG CenterWatch iConnect, searching, identifying and enrolling in mitochondrial disease clinical trials and observational studies is now a simple and streamlined process for affected patient families.
The easy-to-use online tool enables patients to target and accelerate their search for a clinical trial using multiple filters such as age, traveling distance, study type and clinical trial phase status. A compiled list of relevant clinical trials featuring detailed descriptions, eligibility requirements and direct links to connect with the study’s primary contact is instantaneous. The Mito Clinical Trials Finder tool is continually updated by the UMDF to include active research studies around the globe.
“Clinical trials are critical to advance progress towards better treatments, therapies, and someday a cure, and this tool will make it less cumbersome for patients to find a clinical trial that could be right for them,” says Dr. Bruce Cohen, Chair of the UMDF Scientific and Medical Advisory Board. “Supporting our patients and their families with a fast and easy way to access clinical trial opportunities is an important initiative to increase engagement and participation in research efforts.”
The Mito Clinical Trials Finder tool is complimented by a comprehensive educational overview of the clinical trials process. In one convenient place, patient families can access details on clinical trial phases, answers to frequently asked questions, patient rights and a glossary of terms. A therapeutic development pipeline outlining new treatments being developed and their current progress is also featured.
“We are proud to be accelerating research and moving our mission forward to get safer, more effective treatments into the hands of patients as efficiently as possible while maintaining the highest quality and ethical research standards. UMDF’s decision to launch a clinical trial finder tool on our platform will make clinical research much more accessible and easier to navigate for patients and their families,” said Jill Johnston, President of WCG Study Planning & Site Optimization.
“It’s important for the mitochondrial community to see that progress is being made as a result of clinical trials and that there are clinicians around the world dedicated to this fight,” says Cohen.
To learn more and find a clinical trial specific to mitochondrial disease visit, www.umdf.org/clinical-trials.
Founded in 1996, the United Mitochondrial Disease Foundation (UMDF) works to promote research and education for the diagnosis, treatment and cure of mitochondrial diseases and to provide support for affected individuals and families. Since its inception, the UMDF has funded more than $13 million in research, making it the leading non-governmental contributor of grants focused solely on mitochondrial disease. Based in Pittsburgh, Pennsylvania, the UMDF is a national organization, represented around the world by thousands of members. For more information about mitochondrial disease or the UMDF, visit www.umdf.org.
About WCG CenterWatch iConnect
WCG CenterWatch iConnect provides advanced trial listing technology for the largest patient advocacy groups in the world. It also allows sponsors to set up and manage all aspects of their patient recruitment programs from a single platform across the enterprise. This increased visibility enables them to determine the ROI and effectiveness of each tactic they employ across every study, improving predictability and reducing outreach expense.
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Brian Harman, President & CEO of UMDF