Coronavirus: Recommendations for Patient Families
The health and well-being of patient families, volunteers and staff is our first priority. As the situation with the coronavirus (COVID-19) constantly changes, we will continue to post helpful updates and share guidelines from the Centers for Disease Control (CDC).
Updated COVID-19 Recommendations from UMDF’s Science & Medical Advisory Board – May 2023
COVID-19 updates 2023 Although the COVID-19 pandemic is declared over, the COVID-19 virus is still causing illness and death in the United States and around the world. As we now enter the endemic phase, which means that it...
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SMAB COVID-19 ‘Back to School’ Recommendations for Patient Families
As students return to the classroom this fall, the UMDF’s Scientific and Medical Advisory Board has issued the following recommendations for mitochondrial disease patient families.
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Ask The Mito Doc Webcast Series – COVID Vaccine Resources for Children and Adults
With the availability of COVID-19 vaccines for patients under the age of 18, here are some of our...
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Ask The Mito Doc Webcast Series – Special Coronavirus Update
If you missed the February 2021 “Ask the Mito Doc” webcast,
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Ask The Mito Doc Webcast Series – Special Coronavirus Update
If you missed the February 2021 “Ask the Mito Doc” webcast,
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Genetic Alliance Webinar with Dr. Francis Collins, Director of the National Institutes of Health (NIH)
On Saturday, February 20, 2021, at Noon Eastern Time, Francis Collins, MD, PhD, Director of the National Institutes of Health, will share with us why it is critical that individuals living with chronic diseases and conditions receive the coronavirus vaccine.
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Mitochondrial Medicine Society Response to COVID19 Vaccine
There have been questions posed to UMDF regarding recommendations about people with
mitochondrial disease receiving one of the COVID-19 vaccines in development. As of this date,
Letter to State Health Officials Regarding Vaccine Access for Patients with Mitochondrial Disease and Metabolic Disorders
As the leading advocacy group representing patients with mitochondrial disease or metabolic disorders, we thank your state health department for its ongoing efforts to distribute COVID-19 vaccinations equitably and effectively. We respectfully write to encourage you to include individuals living with mitochondrial disease or other metabolic disorders as a priority in the administration of any FDA-approved or authorized COVID-19 vaccine.
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SARS-CoV-2/COVID-19, COVID-19 Vaccines and Mitochondrial Disease
There have been questions posed to UMDF regarding recommendations about people with
mitochondrial disease receiving one of the COVID-19 vaccines in development. As of this date,
COVID-19 and Isolation for our Adult Patient Community
The following tips were provided by Gail Wehling and Joy Krumdiack, UMDF Ambassadors.
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