Coronavirus: Recommendations for Patient Families
The health and well-being of patient families, volunteers and staff is our first priority. As the situation with the coronavirus (COVID-19) constantly changes, we will continue to post helpful updates and share guidelines from the Centers for Disease Control (CDC).
Ask The Mito Doc Webcast Series – Special Coronavirus Update
If you missed the February 20201’Ask the Mito Doc’ webcast,
Read MoreGenetic Alliance Webinar with Dr. Francis Collins, Director of the National Institutes of Health (NIH)
On Saturday, February 20, 2021, at Noon Eastern Time, Francis Collins, MD, PhD, Director of the National Institutes of Health, will share with us why it is critical that individuals living with chronic diseases and conditions receive the coronavirus vaccine.
Read MoreMitochondrial Medicine Society Response to COVID19 Vaccine
There have been questions posed to UMDF regarding recommendations about people with
mitochondrial disease receiving one of the COVID-19 vaccines in development. As of this date,
Letter to State Health Officials Regarding Vaccine Access for Patients with Mitochondrial Disease and Metabolic Disorders
As the leading advocacy group representing patients with mitochondrial disease or metabolic disorders, we thank your state health department for its ongoing efforts to distribute COVID-19 vaccinations equitably and effectively. We respectfully write to encourage you to include individuals living with mitochondrial disease or other metabolic disorders as a priority in the administration of any FDA-approved or authorized COVID-19 vaccine.
Read MoreSARS-CoV-2/COVID-19, COVID-19 Vaccines and Mitochondrial Disease
There have been questions posed to UMDF regarding recommendations about people with
mitochondrial disease receiving one of the COVID-19 vaccines in development. As of this date,
COVID-19 and Isolation for our Adult Patient Community
The following tips were provided by Gail Wehling and Joy Krumdiack, UMDF Ambassadors.
Read MoreVitamin D & the Coronavirus
As a service to our community, the UMDF Scientific and Medical Advisory Board continues to monitor credible reports about COVID-19 illness and provide periodic updates.
Read MorePart II: “Ask the Mito Doc” Webcast
As a service to our community, the UMDF Scientific and Medical Advisory Board continues to monitor credible reports about COVID-19 illness and provide periodic updates.
Read MoreNIH MINI Study
During these exceptional times with COVID-19 impacting communities worldwide, we recognize that families affected by mitochondrial disease may be particularly concerned.
Read MoreFAQs – Coronavirus
On March 24, 2020, Doctors Bruce Cohen, Fran Kendall, Sumit Parikh and Amy Goldstein conducted a webcast for patient families and caregivers about the impact of the coronavirus. Below are top five questions asked by our patient family community.
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