Coronavirus: Recommendations for Patient Families

The health and well-being of patient families, volunteers and staff is our first priority.  As the situation with the coronavirus (COVID-19) constantly changes, we will continue to post helpful updates and share guidelines from the Centers for Disease Control (CDC). 

Letter to State Health Officials Regarding Vaccine Access for Patients with Mitochondrial Disease and Metabolic Disorders

As the leading advocacy group representing patients with mitochondrial disease or metabolic disorders, we thank your state health department for its ongoing efforts to distribute COVID-19 vaccinations equitably and effectively. We respectfully write to encourage you to include individuals living with mitochondrial disease or other metabolic disorders as a priority in the administration of any FDA-approved or authorized COVID-19 vaccine.

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Vitamin D & the Coronavirus

As a service to our community, the UMDF Scientific and Medical Advisory Board continues to monitor credible reports about COVID-19 illness and provide periodic updates.

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NIH MINI Study

During these exceptional times with COVID-19 impacting communities worldwide, we recognize that families affected by mitochondrial disease may be particularly concerned.

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FAQs – Coronavirus

On March 24, 2020, Doctors Bruce Cohen, Fran Kendall, Sumit Parikh and Amy Goldstein conducted a webcast for patient families and caregivers about the impact of the coronavirus. Below are top five questions asked by our patient family community.

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