Recurring Event LHON Live! Monthly Call

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call:  […]

Recurring Event LHON – Georgia/Florida Connect

LHON – Georgia/Florida Connect

Please Join Us! This call for those living in Georgia and Florida with an interest in LHON takes place quarterly on the second Thursday of the month at 8:00pm EST - unless otherwise noted below. Consider joining the call and sharing your experiences with others in a similar situation. Thursday, March 10, 2022 at 5:00pm […]

Recurring Event LHON – Georgia/Florida Connect

LHON – Georgia/Florida Connect

Please Join Us! This call for those living in Georgia and Florida with an interest in LHON takes place quarterly on the second Thursday of the month at 8:00pm EST - unless otherwise noted below. Consider joining the call and sharing your experiences with others in a similar situation. Thursday, March 10, 2022 at 5:00pm […]

Recurring Event LHON – Young Adults

LHON – Young Adults

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for all young adults (18 and over) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the second […]

LHON – New England Connect

This is a call for those living in New England with an interest in LHON. This call takes place quarterly on the second Tuesday of the month, at 7:30pm Eastern. Hosts Ian Albreski, Howard Sumner, and Molly Garrone facilitate this call. Consider joining the call to share your experiences with others in a similar situation. […]

Recurring Event LHON – Midwest Connect

LHON – Midwest Connect

This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.  This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]

Recurring Event LHON – Southwest Connect

LHON – Southwest Connect

LHON - Southwest Connect This call for those living in the Southwest with an interest in LHON takes place quarterly on the third Tuesday of the month at 8:00pm Pacific. Host Donna Basse facilitates this call. Consider joining the call and sharing your experiences with others in a similar situation.  Reach out to Donna Basse […]

Recurring Event LHON Live! Monthly Call

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call:  […]

Navigating Education with LHON

NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. This Zoom event is your chance to connect with other students, educators, parents and other sighted supporters to discuss Navigating Education with LHON. Please feel free to invite anyone who would benefit from this discussion to join […]

LHON 3460 Zoom Meeting

This Zoom Event is for those with an interest in the LHON 3460 mutation. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call: +13017158592,,95371313871# US +13126266799,,95371313871# […]