This Zoom event is for anyone interested in discussing LHON & Assistive Technology. T

Are you the spouse (or similar) of someone affected by LHON? Would you like to network with others in a similar situation?  Please join our LHON Spouses meet-up Zoom event.

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call:  […]

This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.

This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.

This call is for those living in Texas, Oklahoma, Arkansas and Louisiana, with an interest in LHON.  Host Donna Basse facilitates this call. Consider joining the call and sharing your experiences with others in a similar situation.

This is a call for those living in New England with an interest in LHON.  Consider joining the call to share your experiences with others in a similar situation.

This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.  This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]

LHON - Southwest Connect This call for those living in the Southwest with an interest in LHON takes place quarterly on the third Tuesday of the month at 8:00pm Pacific. Host Donna Basse facilitates this call. Consider joining the call and sharing your experiences with others in a similar situation.  Reach out to Donna Basse […]

Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.