Event Series LHON – Midwest Connect

LHON – Midwest Connect

This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or if […]

Parent and Caregiver Virtual Support Meeting

Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]

Western New York Support Meeting

"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person.  Please let us know if you will be attending by registering HERE. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** […]

Northeast PA Support Meeting

  Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015   You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]

Event Series LHON Assistive Technology

LHON Assistive Technology

This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive Technology instructor. These events will take place alternating months, on the fourth Monday, at 8 pm Eastern / 5 pm Pacific. To join the Zoom event, […]

LHON – Teens

LHON Teens This call is ONLY for teens (under 18) who are affected with LHON vision loss. Consider joining the call to share your experiences with others in a similar situation. Hosts Jeremy Poincenot and Molly Garrone lead this call. Reach out to Molly Garrone at mollyeknox@gmail.com with any questions. Join Details: One option is to use […]

Event Series LHON Onset at Age 60+

LHON Onset at Age 60+

Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older. 

Central Region Virtual Support Meeting

Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Thursday, January 26 • 7:00pm – 8:00pm Central Learn […]