Virtual Energy for Life Walk: Western New York

Virtual Energy for Life Walkathon: Western New York 2021 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the pace of research. For the health and safety of our patient families, teams and fundraisers, […]

Energy for Life Walkathon: Kansas City

Energy for Life Walkathon: Kansas City 2021 September 18 @ 10:30 am -11:00 am Walk your Way this year! You can join us for the 2021 Kansas City Energy for Life Walkathon from anywhere and anytime that works for you! Walk Your Way and support UMDF's mission this year. Sign up a team, join a […]

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Northeast PA Virtual Greet Support Meeting

PA

"Virtual" Support Meeting- Northeast PA Join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! 1:00pm - 3:00pm You must register in advance for this meeting. Register  HERE   After registering, you will receive a confirmation […]

Energy for Life Walkathon – Columbus

Energy for Life Walkathon: Columbus 2021 Get registered at www.energyforlifewalk.org/columbus - create a team, join a team or walk as an individual.   When: September 19, 2021 Where: TBD Contact: events@umdf.org Schedule of Events: Facebook Live Opening Ceremony - www.facebook.com/EFLColumbus For more information, contact Nicole Wilson at nicole@umdf.org or 412-793-8077. Register Today As part of […]

Recurring

LHON – California Connect

NOTE: Since the meeting is intended for those living in California, this virtual meeting is set in Pacific Time. This is a call for those living in California with an interest in LHON. This call takes place every other month on the third Tuesday of the month, at 6pm Pacific. Host Bob Banks facilitates this […]

TK2d Virtual Support Meeting September 2021

TK2d "Virtual" Support Meeting Are you or your loved one impacted by TK2 (Thymidine Kinase 2) deficiency? If so, please join us for a Virtual Support Meeting! We will get to know each other, share resources and build community! Representatives from Zogenix, will be joining us, Join us for a VIRTUAL MEETING! Thursday, September 23,2021 12:00 […]

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Michigan Virtual Support Meeting

Michigan "Virtual" Support Meeting Join us for a VIRTUAL Support Meeting! You are not alone. Join us to share coping tips and connect with others. We meet on the 4th Thursday of each month. 7:00 - 8:00pm ET You must register in advance for this meeting. Register HERE After registering, you will receive a confirmation […]

Recurring

Teen and Young Adult Virtual Meet-Up Ages 16-35

UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

Energy for Life Walkathon: Southern Wisconsin

Energy for Life Walkathon: Southern Wisconsin 2021 September 25 @ 10:30 a.m. - 11:30 a.m. Locations: Fox River Park Area #2 (Waukesha, WI) OR anywhere you are comfortable Fox River Park Arrival Time: 10:30 a.m. Facebook Opening Ceremony: 11:00 a.m. Walk your Way this year! You can join us in person or be a virtual […]

LHON 3460 Zoom Meeting

This Zoom Event is for those with an interest in the LHON 3460 mutation. September 25 from 12:00pm – 1:00pm Eastern November 13 from 12:00pm – 1:00pm Eastern Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. Join Details: One option is to use Internet Audio to call at no charge at: https://zoom.us/j/347809922 Meeting ID:  347 809 […]