LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call: […]
LHON – Teens
This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.
LHON Southeast Connect
This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.
Energy for Life Walkathon San Francisco Bay Area – Virtual
Energy for Life Walkathon San Francisco Bay Area - Virtual Get registered at www.energyforlifewalk.org/sanfrancisco - create a team, join a team or walk as an individual. When: June 10, 2023 Where: Virtual - Walk Your Way For more information, contact Jordan Rogers at jordan.rogers@umdf.org. Register Today As part of this event, you will receive a […]
Energy for Life Walkathon Pittsburgh
North Shore - Great Lawn 400 North Shore Drive, Pittsburgh, PA, United StatesEnergy for Life Walkathon Pittsburgh Get registered at www.energyforlifewalk.org/pittsburgh - create a team, join a team or walk as an individual. When: June 10, 2023 Where: Great Lawn at North Short Riverfront Park 400 N. Shore Drive Pittsburgh, PA 15212 Schedule of Events: 9:00 AM - Registration Starts 9:45 AM - Opening Ceremony 10:00 AM […]
LHON – Texas/Oklahoma/ Arkansas/Louisiana Connect
This call is for those living in Texas, Oklahoma, Arkansas and Louisiana, with an interest in LHON. Host Donna Basse facilitates this call. Consider joining the call and sharing your experiences with others in a similar situation.
LHON – New England Connect
This is a call for those living in New England with an interest in LHON. Consider joining the call to share your experiences with others in a similar situation.
Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York We have a speaker this month! Physical Therapist, Matt Owcarz, PT will join us and will discuss the role of physical therapy in managing chronic neurological disorders You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person. Please […]
LHON – New York, New Jersey, Pennsylvania Connect
This call is for those living in New York, New Jersey, or Pennsylvania with an interest in LHON. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. There's also a Facebook group for those in New York located at this link: New […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
Energy for Life Walk and 5K St. Louis
Tower Grove Park 4256 Magnolia Avenue, St. Louis, MO, United StatesEnergy for Life Walk and 5K St. Louis Get registered at www.energyforlifewalk.org/stlouis - create a team, join a team or walk as an individual. When: June 10, 2023 Where: Tower Grove Park The Sons of Rest Pavilion 4256 Magnolia Avenue St. Louis, MO 63110 Schedule of Events: 7:30 AM - Runner Registration 8:30 AM - […]
Northeast PA Support Meeting
Support Meeting- Northeast PA Third Saturday of each Month- In-Person 1:00pm – 3:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015 You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]