LHON – Teens
LHON Teens This call is for all teens (under 18) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call. Reach out to Molly Garrone at mollyeknox@gmail.com with any questions. The calls takes place from 5:00pm-6:00pm Pacific/8:00pm-9:00pm Eastern - calendar has an Eastern Time setting for this event. Consider joining the call […]
Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
2022 Bank of America Chicago Marathon
UMDF is honored to again be a Charity Partner for the Bank of America Chicago Marathon. The 2022 Chicago Marathon will be UMDF's 12th year participating in the marathon as a charity partner! Team Activate will be running, raising awareness and funds for the UMDF on Sunday, October 9, 2022. Are you already registered to […]
LHON – Young Adults
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for all young adults (18 and over) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the second […]
LHON On-set Over 60
Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call: +13017158592,,95371313871# US +13126266799,,95371313871# US
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
Energy for Life Walkathon – Orlando
Blanchard Park 2451 Dean Road, Orlando, PA, United StatesEnergy for Life Walkathon: Orlando 2022 Get registered at www.energyforlifewalk.org/orlando - create a team, join a team or walk as an individual. When: October 15, 2022 Where: Blanchard Park - Pavilion 2 - 2451 Dean Road - Union Park, FL Schedule of Events: 9:00 AM - Registration Starts 9:45 AM - Opening Ceremony (also streaming […]
Smithson Speed – Cruisin’ for a Cure – Rev it for Riley
Smithson Speed & Engineering 4188 Sulphur Springs Road, Murfreesboro, TNNortheast PA Support Meeting
Support Meeting- Northeast PA Third Saturday of each Month- In-Person 1:00pm – 3:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015 You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]
LHON – Pacific Northwest Connect
This is a call for those living in the Pacific Northwest with an interest in LHON. Consider joining the call to share your experiences with others in a similar situation.