Calendar of Events
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2 events,
Energy for Life Walk: Seattle
Energy for Life Walk: Seattle
Energy for Life Walkathon: Seattle 2023 When: October 1, 2023 Where: Warren G. Magnuson Park 7400 Sand Point Way NE | Seattle, WA 98115 Contact: jordan.rogers@umdf.org Event Schedule 8:30 am - Walk Registration 9:10 am - Opening Ceremony 9:30 am - 1 Mile & 5K Walk Starts Register Today Register today Donate now Register […]
Energy for Life Walk: Atlanta
Energy for Life Walk: Atlanta
Energy for Life Walkathon: Atlanta 2023 When: October 1, 2023 Where: Pernoshal Park 4575 N. Shallowford Road | Dunwoody, GA 30338 Contact: jordan.rogers@umdf.org Register Today Register today Donate now Register to walk with us by forming a team, joining a team, or coming out and walking as an individual. Sponsorship opportunities available for businesses […]
1 event,
California Virtual Support Group Meeting
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]
1 event,
LHON – Teens
LHON – Teens
This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.
1 event,
LHON Live! Monthly Call
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call: […]
1 event,
Adult Virtual Support Meeting
Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
2 events,
Energy for Life Walk: Orlando
Energy for Life Walk: Orlando
Energy for Life Walkathon: Orlando 2023 When: October 7, 2023 Where: Blanchard Park, Pavilion 2 2451 Dean Road | Union Park, FL 32817 Contact: jordan.rogers@umdf.org Event Schedule 9:00 am - Walk Registration 10:00 am - Opening Ceremony 10:30 am - 1 Mile Walk Starts Register Today Register today Donate now Register to walk with […]
Energy for Life Walk: Central Texas
Energy for Life Walk: Central Texas
Energy for Life Walkathon: Central Texas 2023 When: October 7, 2023 Where: TMI Episcopal 20955 W. Tejas Trail | San Antonio, TX 78257 Contact: events@umdf.org Schedule of Events 10:00 am - Walk Registration 11:00 am - Opening Ceremony 11:30 am - 1 Mile Walk Starts 1:00 pm - Closing Ceremony Register Today Register today […]
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1 event,
LHON – Young Adults
LHON – Young Adults
This call is ONLY for young adults (18 and over) who are affected with LHON vision loss.
2 events,
UMDF Ask the Mito Doc Webcast Series – Diet, Nutrition and Nutraceuticals for the Mitochondrial Disease Patient
UMDF Ask the Mito Doc Webcast Series – Diet, Nutrition and Nutraceuticals for the Mitochondrial Disease Patient
Diet and Nutrition is extremely important to the mitochondrial disease patient. Join us to hear from Dr. Mark Tarnopolsky, an expert in diet, nutrition, and nutraceuticals.
LHON Onset at Age 60+
LHON Onset at Age 60+
Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older.
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1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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1 event,
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]
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1 event,
Dads of LHON-Affected “Kids of All Ages”
Dads of LHON-Affected “Kids of All Ages”
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every other month at 8:00pm EST/5:00pm PST. Hosts Tony Wright and Jim Tolve host this open-discussion format call. If you're a […]
2 events,
Western New York Support Meeting
Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person. Please let us know if you will be attending by registering HERE. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** […]
LHON Sisterhood
LHON Sisterhood
Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by carrying an LHON mutation.
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
1 event,
Northeast PA Support Meeting
Northeast PA Support Meeting
Support Meeting- Northeast PA Third Saturday of each Month- In-Person 1:00pm – 3:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015 You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]
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1 event,
LHON Assistive Technology Meeting
LHON Assistive Technology Meeting
This Zoom event is for anyone interested in discussing LHON & Assistive Technology. T
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2 events,
Ohio Virtual Support Meeting
Ohio Virtual Support Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Thursday, April 27 • 12:00pm – 1:00pm Eastern Learn more & register here. Registration […]
Central Region Virtual Support Meeting
Central Region Virtual Support Meeting
Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Thursday, January 26 • 7:00pm – 8:00pm Central Learn […]
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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