Your Voice Energizes Our Fight

Become an Advocate

Join the Fight!

By taking action through advocacy, you can help amplify the patient’s voice and educate policy makers on Capitol Hill.

We need to ensure resources, rights and health insurance coverage are available to the mitochondrial disease patient community.

Congressional Mitochondrial Disease Caucus

Our Caucus develops congressional supporters and champions on the issues that impact our community. Is your representative a member of this bi-partisan caucus? If not, encourage them to join the fight.

Legislation We Are Tracking

Research important state and federal legislation for our community.

Volunteer, Give, Spread the Word

There are a variety of ways to get involved with UMDF to help support its mission.