Welcome! Thank you for your interest in leaving a Legacy Toward a Cure! With a simple gift that costs nothing during your lifetime, you can make a transformational difference for patients and families. There are many ways to plan an estate or legacy gift to UMDF while taking advantage of tax incentives and advancing the UMDF mission. Please contact a member of our Development team to start the planning process that will best suit your personal situation.
In June 2018, we were shocked to receive the news that Dr. Ed Highsmith had unexpectedly passed away. We honor Dr. Highsmith and his commitment to the mitochondrial disease community, knowing that he has touched so many lives. His legacy continues with a recent gift from his brother, John Highsmith. John shared that Ed thought highly of UMDF and its mission and wanted to be sure we were remembered. We thought no better way to memorialize his legacy by sharing some of his story here:
“As one of the directors of the Genomics Laboratory at Mayo Clinic and of the world’s first mitochondrial disease biobank, Dr. Highsmith was an outspoken supporter of and advocate for the diagnosis of mitochondrial disorders as well as mitochondrial research. Every year, he looked forward to attending the national Mitochondrial Medicine symposium and donating to UMDF. ‘I’ll keep giving to UMDF until my own mitochondria give out,’ he once said. Sadly, Dr. Highsmith passed away earlier this year. His legacy, however, and his love of all things mitochondria, live on.”
Linda Hasadsri, MD, PhD
“I always looked forward to seeing Ed at UMDF Symposia. A very recognizable figure manning the Mayo Clinic booth, but more importantly, supporting UMDF. Unlike your normal exhibitor, I could always tell that Ed actually enjoyed attending UMDF Symposia. Staff would always find me to let me know that “Ed was here.” And, of course, I would make my way to his booth making sure he had everything he needed, but more importantly, to say hi and to catch up on recent events. I remember having lunch with Ed. We were the only ones sitting at the table, and we talked about our families, interests, likes and dislikes, everything that had nothing to do with the symposium, the Mayo Clinic or UMDF. I got to get a small glimpse of Ed the man vs Ed the exhibitor and I am glad that we had that short personal time together. It will be a strange feeling to visit the Mayo Clinic booth at our next symposium and not see Ed. He will be missed.”
Charles A. Mohan, Jr., Founder and Chair Emeritus UMDF