1996 – UMDF Founded

The United Mitochondrial Disease Foundation (UMDF) was formed in 1996 by bringing together several of the early mitochondrial foundations and interest groups. Some of these included the COX (Cytochrome c Oxidase) Foundation, founded by Charles (Chuck) Mohan, the PALS (People Affected by Leigh Syndrome) Foundation, founded by Mark Fleming, and the National Leigh’s Disease Foundation (NLDF), founded by Charles Wilbanks.