Education
UMDF Ask the Mito Doc Webcast Series – What is Mitochondrial Disease?
We are pleased to offer this Mito Basics primer...for those who are newly diagnosed OR for those who need a refresher on mito, join Dr. Amy Goldstein and Dr. Sonal Sharma and ask your questions!
World Mitochondrial Disease Awareness Week
Join friends and families from around the world on September 18-24, 2022 to raise awareness of mitochondrial disease (mito) on a global scale through educational, fundraising and advocacy activities.
Third Annual Mitochondrial Medicine Virtual Symposium and Education Day
Monday, September 19 from 9am to 3:30pm Eastern Time During Awareness Week, Children’s Hospital of Philadelphia is hosting this full-day virtual event for clinicians, researchers and others who care for patients with complex mitochondrial disorders. Families are welcome to attend as well. This educational event will explore recent advances in mitochondrial DNA disease recurrent prevention, acute care management […]
Next Generation Therapeutics Awareness Week Virtual Event
Monday, September 19 from 5pm to 6:30pm Eastern Join The Children's Hospital of Philadelphia (CHOP) and the United Mitochondrial Disease Foundation (UMDF) on September 19 for this special virtual event during Mitochondrial Disease Awareness Week. The goal of this annual event is to speak with pharmaceutical partners and families to learn about the challenges and complexities of delivering life-giving therapies to patients […]
Webinar – mitoSHARE – What We’ve Learned, and What Comes Next
mitoSHARE – What We’ve Learned, and What Comes Next Tune in as Dr. Philip Yeske, UMDF's Science & Alliance Officer, gives an update on UMDF’s patient registry, mitoSHARE, six months after the platform's launch. Dr. Yeske will also provide a primer on the importance of patient registries like mitoSHARE, outline what we've already learned, and […]
UMDF Ask the Mito Doc Webcast Series – Impact and Highlights from Mitochondrial Medicine 2022
We are pleased to provide Highlights from UMDF Mitochondrial Medicine 2022 and hear from our panel of clinicians as to the impact of sessions this past year - what were the biggest take aways from a clinician perspective. Join us and ask your questions!
UMDF Ask the Mito Doc Webcast Series – Ophthalmic Manifestations of Mitochondrial Diseases
In honor of Blind Awareness Month, Dr. Rustum Karanjia will share a presentation on Ophthalmic Manifestations of Mitochondrial Diseases. Join us and have your questions ready for Dr. Karanjia!
UMDF Ask the Mito Doc Webcast Series – Maintaining Immune Health in Mitochondrial Disease
Fall and Winter brings in the cold/flu/COVID season and many holidays to navigate. Join us to hear from Dr. Peter McGuire and get an update on current trends with Immune Health and Mito.
UMDF Ask the Mito Doc Webcast Series – What to Expect as an Adult Mito Patient
This month, Dr. Michio Hirano will repeat his Mito Med 2022 talk which is focused on our Adult Mito Community. This is a great opportunity to hear from Dr. Hirano and ask your questions!
Special UMDF Clinical Trial Update – UMDF Bench-to-Bedside
It is time to get an update regarding Clinical Trials - those recruiting and/or those that have general information to share.
UMDF Ask the Mito Doc Webcast Series – Conserving your Energy in the New Year
We are kicking off 2023 with a special Ask the Mito Doc Webcast - one of our very own UMDF Support Ambassadors will tips on conserving energy in the New Year and Dr. Zolkipli Cunningham will field medical questions on the subject.
Navigating Education with LHON
NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. This Zoom event is your chance to connect with other students, educators, parents and other sighted supporters to discuss Navigating Education with LHON. Please feel free to invite anyone who would benefit from this discussion to join […]