LHON – Teens

LHON Teens This call is ONLY for teens (under 18) who are affected with LHON vision loss. Consider joining the call to share your experiences with others in a similar situation. […]

Event Series LHON Onset at Age 60+

LHON Onset at Age 60+

Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older. 

LHON – Young Adults

This call is ONLY for young adults (18 and over) who are affected with LHON vision loss. Consider joining the call to share your experiences with others in a similar situation. Hosts […]

Parenting with LHON

This Zoom event is for anyone interested in discussing parenting while affected with LHON vision loss. Bring your questions and comments to share with the group. Join Details: One option is […]

Event Series LHON – Teens

LHON – Teens

This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.