Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by carrying an LHON mutation.

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.

This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.

This call is for those living in Texas, Oklahoma, Arkansas and Louisiana, with an interest in LHON.  Host Donna Basse facilitates this call. Consider joining the call and sharing your experiences with others in a similar situation.

This is a call for those living in New England with an interest in LHON.  Consider joining the call to share your experiences with others in a similar situation.

This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.  This call […]

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place […]

This Zoom event is for anyone interested in discussing LHON & Assistive Technology. T

This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.