California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Monday, March 7 • 10:00pm – 11:00am Pacific Learn more & register here. […]
Run 4 Raley
15TH ANNUAL RUN4RALEY TWILIGHT 5K RUN, 1 MILE WALK AND KIDS MITO DASH The Streets of Philo Washington Street Philo, IL 61864 What you need to know about our Event... Run4Raley is a 5k Race with a Kids Mito Dash and 1 Mile Walk. The Kids Mito Dash will be 1/4 mile long and ribbons […]
Dads of LHON-Affected “Kids of All Ages”
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every other month at 8:00pm EST/5:00pm PST. Hosts Tony Wright and Jim Tolve host this open-discussion format call. If you're a […]
EFL Team Captain Rally Call
Calling all Team Captains! If you are, have ever been or are interested in becoming a Team Captain, this virtual call is for you! We are hosting a Rally Call for all team captains (and their co-captains) to come together, meet and learn from each other. During our one hour together, we will discuss ways […]
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call: […]
Energy for Life Walk: Chicago
Katherine Legge Memorial Park 5901 County Line Road, Hinsdale, IL, United StatesEnergy for Life Walkathon: Chicago 2022 When: September 11, 2022 Where: Katherine Legge Memorial Park, Hinsdale, IL Contact: events@umdf.org Schedule of Events Sunday, September 11, 2022 9:00 am - Walk Registration 10:00 am - Opening Ceremony (Streaming live on Facebook - www.facebook.com/eflchicago) 10:30 am - Walk Starts 11:30 am - Picnic and Closing Ceremony […]
World Mitochondrial Disease Awareness Week
Join friends and families from around the world on September 18-24, 2022 to raise awareness of mitochondrial disease (mito) on a global scale through educational, fundraising and advocacy activities.
Third Annual Mitochondrial Medicine Virtual Symposium and Education Day
Monday, September 19 from 9am to 3:30pm Eastern Time During Awareness Week, Children’s Hospital of Philadelphia is hosting this full-day virtual event for clinicians, researchers and others who care for patients with complex mitochondrial disorders. Families are welcome to attend as well. This educational event will explore recent advances in mitochondrial DNA disease recurrent prevention, acute care management […]
Next Generation Therapeutics Awareness Week Virtual Event
Monday, September 19 from 5pm to 6:30pm Eastern Join The Children's Hospital of Philadelphia (CHOP) and the United Mitochondrial Disease Foundation (UMDF) on September 19 for this special virtual event during Mitochondrial Disease Awareness Week. The goal of this annual event is to speak with pharmaceutical partners and families to learn about the challenges and complexities of delivering life-giving therapies to patients […]
LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]
Webinar – mitoSHARE – What We’ve Learned, and What Comes Next
mitoSHARE – What We’ve Learned, and What Comes Next Tune in as Dr. Philip Yeske, UMDF's Science & Alliance Officer, gives an update on UMDF’s patient registry, mitoSHARE, six months after the platform's launch. Dr. Yeske will also provide a primer on the importance of patient registries like mitoSHARE, outline what we've already learned, and […]
UMDF Ask the Mito Doc Webcast Series – Impact and Highlights from Mitochondrial Medicine 2022
We are pleased to provide Highlights from UMDF Mitochondrial Medicine 2022 and hear from our panel of clinicians as to the impact of sessions this past year - what were the biggest take aways from a clinician perspective. Join us and ask your questions!