LHON – Pacific Northwest Connect
This is a call for those living in the Pacific Northwest with an interest in LHON. Consider joining the call to share your experiences with others in a similar situation.
World Mitochondrial Disease Awareness Week
Join friends and families from around the world on September 18-24, 2022 to raise awareness of mitochondrial disease (mito) on a global scale through educational, fundraising and advocacy activities.
Third Annual Mitochondrial Medicine Virtual Symposium and Education Day
Monday, September 19 from 9am to 3:30pm Eastern Time During Awareness Week, Children’s Hospital of Philadelphia is hosting this full-day virtual event for clinicians, researchers and others who care for patients with complex mitochondrial disorders. Families are welcome to attend as well. This educational event will explore recent advances in mitochondrial DNA disease recurrent prevention, acute care management […]
Next Generation Therapeutics Awareness Week Virtual Event
Monday, September 19 from 5pm to 6:30pm Eastern Join The Children's Hospital of Philadelphia (CHOP) and the United Mitochondrial Disease Foundation (UMDF) on September 19 for this special virtual event during Mitochondrial Disease Awareness Week. The goal of this annual event is to speak with pharmaceutical partners and families to learn about the challenges and complexities of delivering life-giving therapies to patients […]
LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]
LHON – Southwest Connect
LHON - Southwest Connect This call for those living in the Southwest with an interest in LHON takes place quarterly on the third Tuesday of the month at 8:00pm Pacific. Host Donna Basse facilitates this call. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Donna Basse […]
Webinar – mitoSHARE – What We’ve Learned, and What Comes Next
mitoSHARE – What We’ve Learned, and What Comes Next Tune in as Dr. Philip Yeske, UMDF's Science & Alliance Officer, gives an update on UMDF’s patient registry, mitoSHARE, six months after the platform's launch. Dr. Yeske will also provide a primer on the importance of patient registries like mitoSHARE, outline what we've already learned, and […]
UMDF Ask the Mito Doc Webcast Series – Impact and Highlights from Mitochondrial Medicine 2022
We are pleased to provide Highlights from UMDF Mitochondrial Medicine 2022 and hear from our panel of clinicians as to the impact of sessions this past year - what were the biggest take aways from a clinician perspective. Join us and ask your questions!
OH – 9th Annual Carlos Alberto Golf Outing
Pipestone Golf Coue 4344 Benner Road, Miamisburg, OH, United StatesFriday, September 30, 2022 Pipestone Golf Course 4344 Benner Road Miamisburg, OH 45342 12:00 pm - Registration 1:00 pm - Shotgun Start (two man scramble competition with handicap system) 6:30 pm - Dinner, Raffle and Awards One Player (including dinner) - $98 Two Players (including dinner) - $185 Dinner Only - $30 To register for […]
Virtual Energy for Life Walk & 5K – National
Virtual Energy for Life Walk & 5K: National 2022 Get registered at www.energyforlifewalk.org/national– create a team, join a team or walk as an individual. When: October 01, 2022 Where: Your favorite place to walk or run! Contact: Tania Hanscom - taniah@umdf.org Register Today As part of this event, you will receive a personal fundraising page […]
Energy for Life Walk: Central Texas
TMI Episcopal 20955 W. Tejas Trail, San Antonio, TXEnergy for Life Walkathon: Central Texas 2022 When: October 1, 2022 Where: TMI Episcopal, San Antonio, TX Contact: events@umdf.org Schedule of Events Saturday, October 1, 2022 10:00 am - Walk Registration 11:00 am - Opening Ceremony (Streaming live on Facebook - www.facebook.com/mitowalk) 11:30 am - 1 Mile Walk Starts 1:00 pm - Closing Ceremony […]
Virtual Energy for Life Walkathon – New England
Virtual Energy for Life Walkathon: New England 2022 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the pace of research. For the health and safety of our patient families, teams and fundraisers, we […]