Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]
Dads of LHON-Affected “Kids of All Ages”
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every other month at 8:00pm EST/5:00pm PST. Hosts Tony Wright and Jim Tolve host this open-discussion format call. If you're a […]
Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person. Please let us know if you will be attending by registering HERE. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
UMDF Ask the Mito Doc Webcast Series – Ophthalmic Manifestations of Mitochondrial Diseases
In honor of Blind Awareness Month, Dr. Rustum Karanjia will share a presentation on Ophthalmic Manifestations of Mitochondrial Diseases. Join us and have your questions ready for Dr. Karanjia!
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call: […]
Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]
Energy for Life Walkathon – Charlotte
Mint Museum - Randolph 2730 Randolph Road, Charlotte, NC, United StatesEnergy for Life Walkathon: Charlotte 2022 Get registered at www.energyforlifewalk.org/charlotte - create a team, join a team or walk as an individual. When: November 5, 2022 Where: The Mint Museum - Randolph Contact: events@umdf.org Schedule of Events: 8:30 AM - Registration Starts 9:30 AM - Opening Ceremony (also streaming live on Facebook - www.facebook.com/UMDF.EFL.Charlotte) 10:00 […]
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]
TK2d Virtual Support Meeting November 2022
TK2d "Virtual" Support Meeting Are you or your loved one impacted by TK2 (Thymidine Kinase 2) deficiency? If so, please join us for a Virtual Support Meeting! We will get to know each other, share resources and build community! Representatives from UCB, will be joining us, Join us for a VIRTUAL MEETING! Wednesday, November 9,2022 12:00 […]
OH – Songs for Sarah 2022
Turtle Creek Tavern 5571 N Hamilton Road, Columbus, OH, United StatesDate: Friday, November 11, 2022 Location: Turtle Creek Tavern, Columbus Ohio Start Time: 8:00 PM Performers: School of Rock (Gahanna) House Band Glare Keith Cousineau tOd and Bad Ideas Benefiting the United Mitochondrial Disease Foundation Thank you to our in-kind donors: Turtle Creek Tavern X Audio & Ohio Streaming Productions School of Rock (Gahanna) House […]
UMDF Ask the Mito Doc Webcast Series – Maintaining Immune Health in Mitochondrial Disease
Fall and Winter brings in the cold/flu/COVID season and many holidays to navigate. Join us to hear from Dr. Peter McGuire and get an update on current trends with Immune Health and Mito.