LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]
LHON – Southwest Connect
LHON - Southwest Connect This call for those living in the Southwest with an interest in LHON takes place quarterly on the third Tuesday of the month at 8:00pm Pacific. Host Donna Basse facilitates this call. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Donna Basse […]
Webinar – mitoSHARE – What We’ve Learned, and What Comes Next
mitoSHARE – What We’ve Learned, and What Comes Next Tune in as Dr. Philip Yeske, UMDF's Science & Alliance Officer, gives an update on UMDF’s patient registry, mitoSHARE, six months after the platform's launch. Dr. Yeske will also provide a primer on the importance of patient registries like mitoSHARE, outline what we've already learned, and […]
UMDF Ask the Mito Doc Webcast Series – Impact and Highlights from Mitochondrial Medicine 2022
We are pleased to provide Highlights from UMDF Mitochondrial Medicine 2022 and hear from our panel of clinicians as to the impact of sessions this past year - what were the biggest take aways from a clinician perspective. Join us and ask your questions!
OH – 9th Annual Carlos Alberto Golf Outing
Pipestone Golf Coue 4344 Benner Road, Miamisburg, OH, United StatesFriday, September 30, 2022 Pipestone Golf Course 4344 Benner Road Miamisburg, OH 45342 12:00 pm - Registration 1:00 pm - Shotgun Start (two man scramble competition with handicap system) 6:30 pm - Dinner, Raffle and Awards One Player (including dinner) - $98 Two Players (including dinner) - $185 Dinner Only - $30 To register for […]
Virtual Energy for Life Walk & 5K – National
Virtual Energy for Life Walk & 5K: National 2022 Get registered at www.energyforlifewalk.org/national– create a team, join a team or walk as an individual. When: October 01, 2022 Where: Your favorite place to walk or run! Contact: Tania Hanscom - taniah@umdf.org Register Today As part of this event, you will receive a personal fundraising page […]
Energy for Life Walk: Central Texas
TMI Episcopal 20955 W. Tejas Trail, San Antonio, TXEnergy for Life Walkathon: Central Texas 2022 When: October 1, 2022 Where: TMI Episcopal, San Antonio, TX Contact: events@umdf.org Schedule of Events Saturday, October 1, 2022 10:00 am - Walk Registration 11:00 am - Opening Ceremony (Streaming live on Facebook - www.facebook.com/mitowalk) 11:30 am - 1 Mile Walk Starts 1:00 pm - Closing Ceremony […]
Virtual Energy for Life Walkathon – New England
Virtual Energy for Life Walkathon: New England 2022 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the pace of research. For the health and safety of our patient families, teams and fundraisers, we […]
Energy for Life Walkathon – Seattle
Energy for Life Walkathon: Seattle 2022 Get registered at www.energyforlifewalk.org/seattle– create a team, join a team or walk as an individual. When: October 02, 2022 Where: Magnuson Park Contact: Tania Hanscom - taniah@umdf.org Register Today As part of this event, you will receive a personal fundraising page when you register. Register today Donate now
Energy for Life Walkathon – Atlanta
Pernoshal Park 4575 N. Shallowford Road, Dudwoody, GA, United StatesEnergy for Life Walkathon: Atlanta 2022 Get registered at www.energyforlifewalk.org/atlanta - create a team, join a team or walk as an individual. When: October 2, 2022 Where: Pernoshal Park - 4575 N. Shallowford Road, Dunwoody, GA Schedule of Events: 12:30 PM - Registration Starts 1:45 PM - Opening Ceremony (also streaming live on Facebook - […]
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call: […]