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Navigating Employment/Careers with LHON
Navigating Employment/Careers with LHON
This call takes place a few times each year at 8:00pm EST/5:00pm PST and is hosted by Zak Turner. If you are interested in LHON and employment-related matters, you are invited to join. Reach out to Zak Turner at zakturner24@gmail.com with any questions. Tuesday, March 23, 2021 at 5:00pm Pacific/8:00pm Eastern Tuesday, June 22, 2021 […]
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LHON Sisterhood
LHON Sisterhood
Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
2 events,
Virtual Energy for Life Walkathon – Orlando
Virtual Energy for Life Walkathon – Orlando
Virtual Energy for Life Walkathon: Orlando 2021 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the pace of research. For the health and safety of our patient families, teams and fundraisers, we will […]
Virtual Energy for Life Walk & 5K: National
Virtual Energy for Life Walk & 5K: National
Walk your Way this year! You can join us for the 2021 National Energy for Life Walk & 5K taking place on October 2, 2021. You can now participate in an Energy for Life event - regardless as to where you live! Sign up a team, join a team or make your donation today at […]
3 events,
Energy for Life Walkathon: Seattle
Energy for Life Walkathon: Seattle
Walk Your Way Seattle Register your team, join a team or make a donation at www.energyforlifewalk.org/seattle Interested in supporting the walk with a sponsorship? Contact Tania Hanscom at taniah@umdf.org or 412-793-8077 today!
Virtual Energy for Life Walkathon – New England
Virtual Energy for Life Walkathon – New England
Virtual Energy for Life Walkathon: New England 2021 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the pace of research. For the health and safety of our patient families, teams and fundraisers, we […]
EFL: Atlanta
EFL: Atlanta
EFL Atlanta - www.energyforlifewalk.org/atlanta Sunday, October 3, 2021 Pernoshal Park 4575 N. Shallowford Road Dunwoody, GA 30338 Registration starts at 12:30PM Walk begins 2:00 PM
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2 events,
Heartland States Virtual Support Meeting ( St. Louis Area, MO,IL,KS,NE)
Heartland States Virtual Support Meeting ( St. Louis Area, MO,IL,KS,NE)
"Virtual" Support Meeting- Heartland States St. Louis area invites our friends in Missouri, Illinois, Kansas and Nebraska to join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. First Tuesday of every month 7:00pm - 8:00pm CT Register in advance HERE After registering, you will […]
LHON Spouses Zoom Event
LHON Spouses Zoom Event
This call is for spouses (or similar) of someone affected by LHON. Jerrie Lore and Mandy Quinn will host this event. There's also a Facebook group for Spouses of LHON-Affected People located at this link: Spouses of LHON-Affected People. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. Join Details: One option is to use Internet […]
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LHON Live! Monthly Call
LHON Live! Monthly Call
This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call: Jessica Loomer and Andy Marks Reach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with […]
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Adult Virtual Support Meeting 2021
Adult Virtual Support Meeting 2021
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
3 events,
Energy for Life Walkathon – Central Texas
Energy for Life Walkathon – Central Texas
Energy for Life Walkathon: Central Texas 2021 October 9 @ 10:00 am - 10:30 am Walk your Way this year! You can join us for the 2021 Central Texas Energy for Life Walkathon from anywhere and anytime that works for you! Walk Your Way and support UMDF's mission this year. Sign up a team, join […]
Virtual Energy for Life Walkathon-Charlotte
Virtual Energy for Life Walkathon-Charlotte
Join us for the 12th Annual Energy For Life Walkathon-Charlotte 2021! Event Details Saturday, October 9, 2021 Virtual Energy for Life Walkathon: Charlotte 2021 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the […]
8th Annual Carlos Alberto Memorial Golf Outing
8th Annual Carlos Alberto Memorial Golf Outing
The 8th Annual Carlos Alberto Memorial Golf Outing Benefiting: United Mitochondrial Disease Foundation When: October 9, 2021 at 12:00pm Where: Pipestone Golf Course, 4344 Benner Road, Miamisburg, OH 45342 Contact: cristinarueg@gmail.com Event Details What: A golf tournament organized to raise funds for mitochondrial disorders and honor the memory of Carlos Alberto. One Player (dinner included): $98 Two Players […]
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Energy for Life Walk: Delaware Valley
Energy for Life Walk: Delaware Valley
Energy for Life Walkathon: Delaware Valley 2021 When: October 10, 2021 - Registration at 10:30am Walk begins at 12pm Where: Washington Lake Park Amphitheater - 626 Hurffville-Cross Keys Road - Sewell, NJ 08080 Contact: events@umdf.org Register Today As part of this event, you will receive a personal fundraising page when you register. Register today Donate now
1 event,
LHON – Texas & Oklahoma Connect
LHON – Texas & Oklahoma Connect
LHON - Texas & Oklahoma Connect This call for those living in Texas and Oklahoma with an interest in LHON takes place every other month on the second Monday of the month at 6:00pm CST. Host Donna Basse facilitates this call. Consider joining the call and sharing your experiences with others in a similar situation. […]
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UMDF Ask the Mito Doc Webcast Series – Mito Med Scientific Synopsis
UMDF Ask the Mito Doc Webcast Series – Mito Med Scientific Synopsis
Interested in what is happening in Mitochondrial Research? Drs. Kaufman, Koehler, Manfredi and Copeland, session moderators for Mitochondrial Medicine 2021 Virtual, will share what they heard during the scientific sessions and what excites them for the future.
LHON – New England Connect
LHON – New England Connect
This is a call for those living in New England with an interest in LHON. This call takes place every other month on the second Tuesday of the month, at 7:30pm Eastern. Hosts Ian Albreski, Howard Sumner, and Molly Garrone facilitate this call. Consider joining the call to share your experiences with others in a […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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Moms of LHON-Affected “Kids of All Ages” (Saturday)
Moms of LHON-Affected “Kids of All Ages” (Saturday)
This additional bimonthly call is also for Moms of LHON-Affected "Kids of All Ages" takes place on the third Saturday of every month at 12:00pm EST/9:00am PST.
Northeast PA Virtual Greet Support Meeting 2021
Northeast PA Virtual Greet Support Meeting 2021
"Virtual" Support Meeting- Northeast PA Join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! 1:00pm - 3:00pm You must register in advance for this meeting. Register HERE After registering, you will receive a confirmation […]
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LHON – Midwest Connect
LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. August 16 from 8:00pm – 9:00pm Eastern October 18 from 8:00pm – 9:00pm Eastern December 20 from 8:00pm – 9:00pm Eastern Reach out to Lissa Poincenot at lhonpoince@aol.com with […]
MELAS Virtual Support Meeting October 2021
MELAS Virtual Support Meeting October 2021
MELAS "Virtual" Support Meeting Are you or your loved one impacted by MELAS (Mitochondrial Encephalopathy, Lactic Acidosis, and Stroke-like episodes)? If so, please join us for a Virtual Support Meeting! We will get to know each other, share resources and build community! Join us for a VIRTUAL MEETING! Monday, October 18, 2021 8:00pm - 9:00pm ET You must […]
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CPEO/KSS Virtual Support Meetings- October 2021
CPEO/KSS Virtual Support Meetings- October 2021
Save the Date! Join us for a CPEO/KSS Virtual Support Meeting! This meeting will be held on October 19,2021 at 12:00noon ET and 8:00pm ET to accommodate schedules of all. Registration information will follow.
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Dads of LHON-Affected “Kids of All Ages”
Dads of LHON-Affected “Kids of All Ages”
The monthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every month at 8:00pm EST/5:00pm PST. If you're a dad of someone affected by LHON, consider joining the call and sharing your experiences with others in a similar situation. Tony Wright and Jim Tolve host this open-discussion format […]
Milwaukee Virtual Support Meeting 2021
Milwaukee Virtual Support Meeting 2021
"Virtual" Support Meeting Milwaukee Join us for a VIRTUAL SUPPORT MEETING! You are not alone. Join us to share coping tips and connect with others. We want to meet YOU! The 3rd Wednesday of every month 6:30 - 8:30pm CT Register in advance for this meeting: *** Please note that we are using a new […]
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Western New York Virtual Support Meeting 2021
Western New York Virtual Support Meeting 2021
"Virtual" Support Meeting- Western New York Join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** Please note that we are using a new link to register for this […]
LHON – Pacific Northwest Connect
LHON – Pacific Northwest Connect
This is a call for those living in the Pacific Northwest with an interest in LHON. This call takes place every other month on the third Thursday of the month. Consider joining the call to share your experiences with others in a similar situation. Hosts Patrick Doolittle, Jana Bourne, and Ashley Trenkenschuh facilitate this call. […]
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ARS Virtual Support Meeting October 2021
ARS Virtual Support Meeting October 2021
ARS "Virtual" Support Meeting Are you or your loved one impacted by a mitochondrial ARS gene mutation?? Mito ARS genes are a family of related genes known as Aminoacyl-tRNA Synthetases (ARSs). If so, please join us for a Virtual Support Meeting! We will get to know each other, share resources and build community! Join us […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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Michigan Virtual Support Meeting 2021
Michigan Virtual Support Meeting 2021
Michigan "Virtual" Support Meeting Join us for a VIRTUAL Support Meeting! You are not alone. Join us to share coping tips and connect with others. We meet on the 4th Thursday of each month. 7:00 - 8:00pm ET You must register in advance for this meeting. Register HERE After registering, you will receive a confirmation […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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LHON – Teens
LHON – Teens
LHON Teens This call is for all teens (under 18) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month unless otherwise noted. Reach out to Molly Garrone at mollyeknox@gmail.com with any questions. Consider […]
Heartland States Virtual Support Meeting ( St. Louis Area, MO,IL,KS,NE)
Heartland States Virtual Support Meeting ( St. Louis Area, MO,IL,KS,NE)
"Virtual" Support Meeting- Heartland States St. Louis area invites our friends in Missouri, Illinois, Kansas and Nebraska to join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. First Tuesday of every month 7:00pm - 8:00pm CT Register in advance HERE After registering, you will […]
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LHON Live! Monthly Call
LHON Live! Monthly Call
This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call: Jessica Loomer and Andy Marks Reach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with […]
UMDF Ask the Mito Doc Webcast Series – Getting Physical in the Fall/Winter
UMDF Ask the Mito Doc Webcast Series – Getting Physical in the Fall/Winter
Looking for helpful tips on getting your mitochondria moving in the Fall/Winter months - Dr. Eva and Physical Therapist Jenn Poirier will share information and hands-on guidance to help you keep your mitochondria healthy.
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Adult Virtual Support Meeting 2021
Adult Virtual Support Meeting 2021
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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