Calendar of Events
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California Virtual Support Group Meeting
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Monday, March 7 • 10:00pm – 11:00am Pacific Learn more & register here. […]
1 event,
Heartland States Virtual Support Meeting ( St. Louis Area, MO,IL,KS,NE)
Heartland States Virtual Support Meeting ( St. Louis Area, MO,IL,KS,NE)
"Virtual" Support Meeting- Heartland States St. Louis area invites our friends in Missouri, Illinois, Kansas and Nebraska to join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. First Tuesday of every month 7:00pm - 8:00pm CT Register in advance HERE After registering, you will […]
2 events,
mitoSHARE Office Hours – Patient Registry Weekly Support
mitoSHARE Office Hours – Patient Registry Weekly Support
Are you new to mitoSHARE? Do you want to learn about our worldwide patient-populated registry, understand its applications, features, and overall function? Join our Patient Registry Team for Office Hours, every Wednesday 1:00-2:00pm EST. Whether you have already joined or are interested in joining mitoSHARE, log in using the Zoom link below and our team […]
LHON Live! Monthly Call
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call: […]
1 event,
Adult Virtual Support Meeting
Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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1 event,
mitoSHARE Office Hours – Patient Registry Weekly Support
mitoSHARE Office Hours – Patient Registry Weekly Support
Are you new to mitoSHARE? Do you want to learn about our worldwide patient-populated registry, understand its applications, features, and overall function? Join our Patient Registry Team for Office Hours, every Wednesday 1:00-2:00pm EST. Whether you have already joined or are interested in joining mitoSHARE, log in using the Zoom link below and our team […]
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1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
1 event,
Energy for Life Walkathon – Walk your Way San Francisco Bay Area
Energy for Life Walkathon – Walk your Way San Francisco Bay Area
When: May 14, 2022 Where: Anywhere you'd like! Contact: taniah@umdf.org Register Today As part of this event, you will receive a personal fundraising page when you register. Register today Donate now
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Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]
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3 events,
mitoSHARE Office Hours – Patient Registry Weekly Support
mitoSHARE Office Hours – Patient Registry Weekly Support
Are you new to mitoSHARE? Do you want to learn about our worldwide patient-populated registry, understand its applications, features, and overall function? Join our Patient Registry Team for Office Hours, every Wednesday 1:00-2:00pm EST. Whether you have already joined or are interested in joining mitoSHARE, log in using the Zoom link below and our team […]
UMDF Ask the Mito Doc Webcast Series – What is Mitochondrial Disease?
UMDF Ask the Mito Doc Webcast Series – What is Mitochondrial Disease?
We are pleased to offer this Mito Basics primer...for those who are newly diagnosed OR for those who need a refresher on mito, join Dr. Amy Goldstein and Dr. Sonal Sharma and ask your questions!
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.
2 events,
Western New York Support Meeting
Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. NOTE: Beginning November 18, 2021, we will be gathering in-person for select months. You will be receiving e-blasts with such updates. In-person information is noted below. The third Thursday of each month 6:00pm […]
LHON – Pacific Northwest Connect
LHON – Pacific Northwest Connect
NOTE: Since the meeting is for Pacific Northwest, this virtual meeting is set in Pacific Time. This is a call for those living in the Pacific Northwest with an interest in LHON. This call takes place quarterly on the third Thursday of the month. Consider joining the call to share your experiences with others in […]
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
3 events,
Energy for Life Walkathon – Pittsburgh
Energy for Life Walkathon – Pittsburgh
When: May 21, 2022 Where: Great Lawn at North Shore Riverfront Park Contact: events@umdf.org Schedule of Events Saturday - May 21st 9:00 AM - Walk Registration (www.energyforlifewalk.org/pittsburgh) 9:45 AM - Event Opening Ceremony (also streamed live on Facebook - www.facebook.com/EFLPittsburgh) 10:00 AM - 1 mile or 3k Walk Starts Questions? Contact Nicole Wilson at […]
Navigating Employment with LHON – Europe Too
Navigating Employment with LHON – Europe Too
Saturday, May 21, 2022 at 9:00am Pacific/12:00pm Eastern - Navigating Employment with LHON - Europe Too There's also a Facebook group for Employment: Navigating Employment/Careers with LHON Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or if your phone plan includes Unlimited […]
Northeast PA Virtual Support Group Meeting
Northeast PA Virtual Support Group Meeting
"Virtual" Support Meeting- Northeast PA Join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! 1:00pm - 3:00pm You must register in advance for this meeting. Register HERE After registering, you will receive a confirmation […]
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1 event,
mitoSHARE Office Hours – Patient Registry Weekly Support
mitoSHARE Office Hours – Patient Registry Weekly Support
Are you new to mitoSHARE? Do you want to learn about our worldwide patient-populated registry, understand its applications, features, and overall function? Join our Patient Registry Team for Office Hours, every Wednesday 1:00-2:00pm EST. Whether you have already joined or are interested in joining mitoSHARE, log in using the Zoom link below and our team […]
1 event,
Michigan Virtual Support Meeting
Michigan Virtual Support Meeting
Michigan "Virtual" Support Meeting Join us for a VIRTUAL Support Meeting! You are not alone. Join us to share coping tips and connect with others. We meet on the 4th Thursday of each month. 7:00 - 8:00pm ET You must register in advance for this meeting. Register HERE After registering, you will receive a confirmation […]
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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LHON Live! Monthly Call
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call: […]
2 events,
Adult Virtual Support Meeting
Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]
LHON – Georgia/Florida Connect
LHON – Georgia/Florida Connect
Please Join Us! This call for those living in Georgia and Florida with an interest in LHON takes place quarterly on the second Thursday of the month at 8:00pm EST - unless otherwise noted below. Consider joining the call and sharing your experiences with others in a similar situation. Thursday, March 10, 2022 at 5:00pm […]
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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