This call is for those living in Texas, Oklahoma, Arkansas and Louisiana, with an interest in LHON.  Host Donna Basse facilitates this call. Consider joining the call and sharing your experiences with others in a similar situation.

This is a call for those living in New England with an interest in LHON.  Consider joining the call to share your experiences with others in a similar situation.

"Virtual AND In-Person" Support Meeting- Western New York We have a speaker this month! Physical Therapist, Matt Owcarz, PT will join us and will discuss the role of physical therapy in managing chronic neurological disorders You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person.  Please […]

This call is for those living in New York, New Jersey, or Pennsylvania with an interest in LHON. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. There's also a Facebook group for those in New York located at this link: New […]

UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

Energy for Life Walk and 5K St. Louis Get registered at www.energyforlifewalk.org/stlouis  - create a team, join a team or walk as an individual. When: June 10, 2023 Where: Tower Grove Park The Sons of Rest Pavilion 4256 Magnolia Avenue St. Louis, MO 63110 Schedule of Events: 7:30 AM - Runner Registration 8:30 AM - […]

  Support Meeting- Northeast PA Third Saturday of each Month- In-Person 1:00pm – 3:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015   You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]