• UMDF Mitochondrial Medicine 2025 in St. Louis, MO

    Hyatt Regency St. Louis Arch 315 CHESTNUT STREET, ST LOUIS, MO, MO, United States

    Join us in St. Louis, Missouri, as we bring together the best minds in mitochondrial medicine and the patients we serve.

  • LHON – New York, New Jersey, Pennsylvania Connect

    Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. […]

  • LHON West Connect

    LHON West Connect

    The LHON Southwest & LHON Pacific Northwest groups have merged! This Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any […]

  • LHON Southeast Connect

    LHON Southeast Connect

    This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.

  • LHON – New York, New Jersey, Pennsylvania Connect

    Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. […]

  • LHON Sisterhood

    LHON Sisterhood Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman […]

  • UMDF, MitoAction, and POLG Foundation Special Webcast – Elamipretide Expanded Access Program (EAP) Update

    Elamipretide Expanded Access Program Update In collaboration with MitoAction and POLG Foundation, join us on Tuesday, Oct. 14 at 12pm ET for special webinar with Stealth BioTherapeutics to provide an update on access to elamipretide via Expanded Access Program (EAP). This program will focus exclusively on EAP for affected individuals currently on therapy, though it […]

  • LHON Onset at Age 60+

    LHON Onset at Age 60+

    Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older.