Kara Strittmatter
LHON Sisterhood
LHON Sisterhood Saturday, October 19, 12:00 – 1:00 pm ET Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss […]
LHON & Entrepreneurs
LHON & Entrepreneurs Monday, October 21, 8:00 – 9:00 pm ET Being an Entrepreneur can be a rewarding employment path for some in the LHON community. This Zoom event is your opportunity to discuss the topic with others currently pursuing that path, thinking about it for themselves, or for those they know. Join Details: One […]
UMDF Ask the Mito Doc Webcast Series – Connecting the Dots
Join us to hear perspectives from Dr. Andrea Gropman and Dr. Bharantendu Chandra as they share their experiences with common mito disease and ultra rare diseases.
LHON Onset at Age 60+
Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older.
UMDF Ask the Mito Doc Webcast Series – Understanding POLG Disorders
Dr. William Copeland and Dr. Bruce Cohen will share information on POLG Disorders - providing a dual perspective on research and clinical practice. Please join us!
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.
UMDF Ask the Mito Doc Webcast Series – Wrapping Up 2024 with the Mito Docs
Join us wrap up the year with at least four mitochondrial specialists - ask questions and hear about any important developments in mitochondrial medicine from each doctor's perspective!
LHON Southwest + Pacific Northwest Connect
Wednesday, December 11, 8:00 – 9:00pm ET (5:00 – 6:00pm PT) The LHON Southwest & LHON Pacific Northwest groups are merging! This Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Pacific Northwest LHON communities! Consider joining the call to share your experiences with […]
LHON Southeast Connect
This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.
LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]
LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or if […]