UMDF Ask the Mito Doc Webcast Series – Starting the New Year with Transitioning
Transitioning medical care from pediatric to adulthood can be an extremely daunting process. Our speakers will share helpful information that will serve as a excellent toolkit to guide you and/or your loved one through the process.
LHON Spouses Zoom Event
This call is for spouses (or similar) of someone affected by LHON. Jerrie Lore and Mandy Quinn will host this event. There's also a Facebook group for Spouses of LHON-Affected People located at this link: Spouses of LHON-Affected People. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. Join Details: One option is to use Internet […]
UMDF Ask the Mito Doc Webcast Series – The Power of the Patient Voice
Transitioning medical care from pediatric to adulthood can be an extremely daunting process. Our speakers will share helpful information that will serve as a excellent toolkit to guide you and/or your loved one through the process.
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.
LHON – New York, New Jersey, Pennsylvania Connect
Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. […]
LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]
LHON On-set Over 60
Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/94948948764 Meeting ID: 949 4894 8764 Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call: +13017158592,,94948948764# US +13126266799,,94948948764# US
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.
UMDF Mitochondrial Medicine 2022 in Phoenix AZ
JW MARRIOTT PHOENIX DESERT RIDGE RESORT & SPA 5350 E MARRIOTT DR, PHOENIX, ARIZONA, AZJoin us in Phoenix, Arizona as we bring together the best minds in mitochondrial medicine and the patients we serve.
LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]
LHON – New York, New Jersey, Pennsylvania Connect
Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. […]
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.