Archive -Category: Timeline Stories

1996 – UMDF Founded

The United Mitochondrial Disease Foundation (UMDF) was formed in 1996 by bringing together several of the early mitochondrial foundations and...

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8:01pm

In 2020, UMDF hosted more than 130 virtual support meetings for patient families.  Margaret moderates many of these.  Before she wraps up her...

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4:15pm

When UMDF learns that one of our mito angels has passed away, Margaret helps to ensure that the family knows we are thinking about them and by...

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2:47pm

Margaret oversees the UMDF Support Ambassador Program.  In that role, she connects patient families to a network of nearly 100 Ambassadors,...

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1:15pm

After a quick lunch, Margaret puts the finishing touches on a planned virtual teen and young adult meeting scheduled later in the week.  Each...

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11:32am

Daniel needs a walk.  It’s also an opportunity for Margaret to visit the post office to mail all of the information packets and resources to...

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10:01am

Making good on her promise to be with her new patient family on their journey with mitochondrial disease, Margaret prepares an email that...

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