Education
UMDF Ask the Mito Doc Webcast Series – Cardiac Issues and the Mitochondrial Disease Patient
Join us as we hear from Dr. Hilary Vernon and Dr. Reid Thompson regarding cardiac issues and how the issues present in the mitochondrial disease patient.
UMDF Ask the Mito Doc Webcast Series – Clinical Trial Readiness and Emerging Therapies for Primary Mitochondrial Disease
Dr. Mary Kay Koenig and Nicole Wilson will share information and insights on what Clinical Trial Readiness means to the future of mitochondrial medicine. Dr. Koenig will provide great insights into Emerging Therapies for PMM.
Webinar – mitoSHARE – First Year Update: What We’ve Learned, and What Comes Next
mitoSHARE – First Year Update: What We’ve Learned, and What Comes Next Tune in as Dr. Philip Yeske, UMDF's Science & Alliance Officer and Nicole Wilson, mitoSHARE Registry Coordinator, gives an update on UMDF’s patient registry, mitoSHARE, one year after the platform's launch. Dr. Yeske and Nicole will also provide a primer on the importance […]
UMDF Ask the Mito Doc Webcast Series – Endocrine Complications of Mitochondrial Disease
We are looking forward to hearing from Dr. Shana McCormack and Dr. David Weber to better understand Endocrine Disorders of Mitochondrial Disease.
Navigating Education with LHON
NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. This Zoom event is your chance to connect with other students, educators, parents and other sighted supporters to discuss Navigating Education with LHON. Please feel free to invite anyone who would benefit from this discussion to join […]
Mitochondrial Medicine 2023: NC Kick-Off Meeting
Mitochondrial Medicine 2023 is coming to Charlotte! Have you always wanted to attend the UMDF Symposium but couldn't travel? Mitochondrial Medicine 2023 will be right in your backyard. This is your year! Mitochondrial Medicine 2023 NC Mitochondrial Medicine 2023 Kick-Off Join us on Tuesday, May 9,2023 at 7:00pm ET. You can register here Agenda What to expect […]
UMDF Ask the Mito Doc Webcast Series – Special Session for the Newly Diagnosed
We are thrilled to have this group of speakers back to present a session for the newly diagnosed. However, whether newly diagnosed or not - this is a GREAT primer.
UMDF Mitochondrial Medicine 2023 in Charlotte, NC
Sheraton & Le Meridien Charlotte Hotel Complex 555 South McDowell Street, Charlotte, NC, United StatesJoin us in Charlotte, North Carolina, as we bring together the best minds in mitochondrial medicine and the patients we serve.
UMDF Ask the Mito Doc Webcast Series – UMDF Mitochondrial Medicine 2023 – July 1
Join us LIVE virtually at the UMDF Mitochondrial Medicine 2023 for this month's Ask the Mito Doc.
Navigating Education with LHON
NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. This Zoom event is your chance to connect with other students, educators, parents and other sighted supporters to discuss Navigating Education with LHON. Please feel free to invite anyone who would benefit from this discussion to join […]
UMDF/MitoAction – Voice of the Pyruvate Dehydrogenase Complex Deficiency (PDCD) FDA Listening Session
The U.S. Food and Drug Administration (FDA) has just confirmed a virtual FDA listening session, co-hosted by the United Mitochondrial Disease Foundation and MitoAction, focused on Pyruvate Dehydrogenase Complex Deficiency (PDCD). The session, The Voice of the Pyruvate Dehydrogenase Complex Deficiency (PDCD) Patient Community, will be held virtually on Friday, September 8, 2023 from 1:00pm to 2:30pm ET. FDA listening sessions […]
World Mitochondrial Disease Awareness Week
Join friends and families from around the world on September 18-24, 2023 to raise awareness of mitochondrial disease (mito) on a global scale through educational, fundraising and advocacy activities.