LHON – Teens
LHON Teens This call is for all teens (under 18) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call. Reach out to Molly Garrone at mollyeknox@gmail.com […]
mitoSHARE Office Hours – Patient Registry Weekly Support
Are you new to mitoSHARE? Do you want to learn about our worldwide patient-populated registry, understand its applications, features, and overall function? Join our Patient Registry Team for Office Hours, […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
Cavan’s Walk, Run & Family Fun Day
Ann MacArthur Primary School Fields 100 Ryefield Road Locust Valley, NY 11560 Special thanks to our co-sponsors: Locust Valley SEPTA and the Middle School Parent Council Registration Information: Adult Walker/Runner - […]
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know […]
LHON – Young Adults
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for all young adults (18 and over) affected by […]
mitoSHARE Office Hours – Patient Registry Weekly Support
Are you new to mitoSHARE? Do you want to learn about our worldwide patient-populated registry, understand its applications, features, and overall function? Join our Patient Registry Team for Office Hours, […]
Milwaukee Virtual Support Meeting
"Virtual" Support Meeting Milwaukee Join us for a VIRTUAL SUPPORT MEETING! You are not alone. Join us to share coping tips and connect with others. We want to meet YOU! […]
Dads of LHON-Affected “Kids of All Ages”
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The monthly call for Dads of LHON-Affected "Kids of All Ages" takes […]
Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. NOTE: Beginning November 18, 2021, we will be […]
LHON – Pacific Northwest Connect
NOTE: Since the meeting is for Pacific Northwest, this virtual meeting is set in Pacific Time. This is a call for those living in the Pacific Northwest with an interest […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]