LHON – Teens

LHON Teens This call is for all teens (under 18) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call.  Reach out to Molly Garrone at mollyeknox@gmail.com […]

Cavan’s Walk, Run & Family Fun Day

Ann MacArthur Primary School Fields 100 Ryefield Road Locust Valley, NY 11560 Special thanks to our co-sponsors: Locust Valley SEPTA and the Middle School Parent Council Registration Information: Adult Walker/Runner - […]

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Parent and Caregiver Virtual Support Meeting

Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know […]

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LHON – Young Adults

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for all young adults (18 and over) affected by […]

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Milwaukee Virtual Support Meeting

"Virtual" Support Meeting Milwaukee Join us for a VIRTUAL SUPPORT MEETING! You are not alone. Join us to share coping tips and connect with others. We want to meet YOU! […]

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Western New York Support Meeting

"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. NOTE:  Beginning November 18, 2021, we will be […]

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LHON – Pacific Northwest Connect

NOTE: Since the meeting is for Pacific Northwest, this virtual meeting is set in Pacific Time. This is a call for those living in the Pacific Northwest with an interest […]